Family member and service provider experiences and perspectives of a digital surveillance and service navigation approach in multicultural context: a qualitative study in identifying the barriers and enablers to Watch Me Grow-Electronic (WMG-E) program with a culturally diverse community

被引:0
作者
Barr, Karlen R. [1 ,2 ]
Hawker, Patrick [2 ]
Winata, Teresa [2 ,3 ,4 ]
Wang, Si [5 ]
Smead, Melissa [6 ]
Ignatius, Hilda [7 ]
Kohlhoff, Jane [2 ,8 ]
Schmied, Virginia [9 ]
Jalaludin, Bin [7 ,10 ]
Lawson, Kenny [11 ]
Liaw, Siaw-Teng [12 ,13 ]
Lingam, Raghu [13 ]
Page, Andrew [14 ]
Lam-Cassettari, Christa [1 ,2 ]
Boydell, Katherine [2 ,15 ]
Lin, Ping-, I [1 ,2 ]
Katz, Ilan [16 ]
Dadich, Ann [11 ]
Raman, Shanti [7 ]
Grace, Rebekah [17 ]
Doyle, Aunty Kerrie [14 ]
McClean, Tom [18 ]
Di Mento, Blaise [2 ]
Preddy, John [6 ,19 ]
Woolfenden, Susan [20 ,21 ]
Eapen, Valsamma [1 ,2 ,3 ]
机构
[1] South Western Sydney Local Hlth Dist, Acad Unit Infant Child & Adolescent Psychiat, Liverpool, NSW, Australia
[2] Univ New South Wales, Fac Med & Hlth, Discipline Psychiat & Mental Hlth, Sydney, NSW, Australia
[3] Ingham Inst Appl Med Res, Liverpool, NSW, Australia
[4] Natl Disabil Insurance Scheme Qual & Safeguards Co, Parramatta, NSW, Australia
[5] Salvat Army, Res & Evaluat Grp, Sydney, NSW, Australia
[6] Murrumbidgee Local Hlth Dist, Wagga Wagga, NSW, Australia
[7] South Western Sydney Local Hlth Dist, Liverpool, NSW, Australia
[8] Karitane, Carramar, NSW, Australia
[9] Western Sydney Univ, Sch Nursing & Midwifery, Parramatta, NSW, Australia
[10] Univ New South Wales, Fac Med & Hlth, Sch Publ Hlth & Community Med, Sydney, NSW, Australia
[11] Western Sydney Univ, Sch Business, Campbelltown, NSW, Australia
[12] Univ New South Wales, WHO Collaborating Ctr eHlth, Sydney, NSW, Australia
[13] Univ New South Wales, Fac Med, Sch Womens & Childrens Hlth, Populat Child Hlth Res Grp, Sydney, NSW, Australia
[14] Western Sydney Univ, Sch Med, Parramatta, NSW, Australia
[15] Black Dog Inst, Sydney, NSW, Australia
[16] Univ New South Wales, Social Policy Res Ctr, Fac Arts Design & Architecture, Sydney, NSW, Australia
[17] Western Sydney Univ, Transforming Early Educ & Child Hlth Res Ctr, Campbelltown, NSW, Australia
[18] Uniting, Parramatta, NSW, Australia
[19] Univ New South Wales, Rural Clin Sch, Sch Clin Med, Wagga Wagga, NSW, Australia
[20] Univ Sydney, Fac Med & Hlth, Sydney Med Sch, Sydney, NSW, Australia
[21] Sydney Local Hlth Dist, Sydney, NSW, Australia
关键词
Child development; Multicultural families; Developmental checks; Digital developmental surveillance; Service navigator; HEALTH-CARE NEEDS; DEVELOPMENTAL SURVEILLANCE; RISK-FACTORS; CHILDREN; POPULATION; PARENTS; PREVALENCE; AUTISM; LOST;
D O I
10.1186/s12913-024-11397-y
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
BackgroundChildren and families from priority populations experienced significant psychosocial and mental health issues to the COVID-19 pandemic. Yet they also faced significant barriers to service access, particularly families from culturally and linguistically diverse (CALD) backgrounds. With most child and family health nurse clinics ceasing in-person consultations due to the pandemic, many children missed out on health and developmental checks. The aim of this study was to investigate the perspectives and experiences of family members and service providers from an urban, CALD community regarding the implementation of a digital, developmental surveillance, Watch Me Grow-Electronic (WMG-E) program.MethodsSemi-structured interviews were conducted with 17 family members, service navigators, and service providers in a multicultural community in South Western Sydney, Australia. This qualitative study is an implementation evaluation which formed as part of a larger, two-site, randomised controlled trial of the WMG-E program. A reflexive thematic analysis approach, using inductive coding, was adopted to analyse the data.ResultsParticipants highlighted the comprehensive and personalised support offered by existing child and family health services. The WMG-E was deemed beneficial because the weblink was easy and quick to use and it enabled access to a service navigator who support family access to relevant services. However, the WMG-E was problematic because of technology or language barriers, and it did not facilitate immediate clinician involvement when families completed the weblink.ConclusionsFamilies and service providers in this qualitative study found that using WMG-E empowered parents and caregivers to access developmental screening and learn more about their child's development and engage with relevant services. This beds down a new and innovative solution to the current service delivery gap and create mechanisms that can engage families currently not accessing services, and increases knowledge around navigating the health and social care services. Notwithstanding the issues that were raised by families and service providers, which include accessibility challenges for CALD communities, absence of clinical oversight during screening, and narrow scope of engagement with available services being offered, it is worth noting that improvements regarding these implementation factors must be considered and addressed in order to have longevity and sustainability of the program.Trial registration.The study is part of a large randomised controlled trial (Protocol No. 1.0, Version 3.1) was registered with ANZCTR (registration number: ACTRN12621000766819) on July 21st, 2021 and reporting of the trial results will be according to recommendations in the CONSORT Statement.ConclusionsFamilies and service providers in this qualitative study found that using WMG-E empowered parents and caregivers to access developmental screening and learn more about their child's development and engage with relevant services. This beds down a new and innovative solution to the current service delivery gap and create mechanisms that can engage families currently not accessing services, and increases knowledge around navigating the health and social care services. Notwithstanding the issues that were raised by families and service providers, which include accessibility challenges for CALD communities, absence of clinical oversight during screening, and narrow scope of engagement with available services being offered, it is worth noting that improvements regarding these implementation factors must be considered and addressed in order to have longevity and sustainability of the program.Trial registration.The study is part of a large randomised controlled trial (Protocol No. 1.0, Version 3.1) was registered with ANZCTR (registration number: ACTRN12621000766819) on July 21st, 2021 and reporting of the trial results will be according to recommendations in the CONSORT Statement.ConclusionsFamilies and service providers in this qualitative study found that using WMG-E empowered parents and caregivers to access developmental screening and learn more about their child's development and engage with relevant services. This beds down a new and innovative solution to the current service delivery gap and create mechanisms that can engage families currently not accessing services, and increases knowledge around navigating the health and social care services. Notwithstanding the issues that were raised by families and service providers, which include accessibility challenges for CALD communities, absence of clinical oversight during screening, and narrow scope of engagement with available services being offered, it is worth noting that improvements regarding these implementation factors must be considered and addressed in order to have longevity and sustainability of the program.Trial registration.The study is part of a large randomised controlled trial (Protocol No. 1.0, Version 3.1) was registered with ANZCTR (registration number: ACTRN12621000766819) on July 21st, 2021 and reporting of the trial results will be according to recommendations in the CONSORT Statement.
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