Priorities for HIV and chronic pain research: results from a survey of individuals with lived experience

被引:0
作者
Robinson-Papp, Jessica [1 ,21 ]
Lawrence, Steven [2 ]
Wadley, Antonia [3 ]
Scott, Whitney [4 ,5 ]
George, Mary Catherine [1 ]
Josh, Jo [6 ]
O'Brien, Kelly K. [7 ,8 ,9 ]
Price, Collen [10 ]
Uebelacker, Lisa [11 ]
Edelman, E. Jennifer [12 ]
Evangeli, Michael [13 ]
Goodin, Burel R. [14 ]
Harding, Richard [15 ]
Nkhoma, Kennedy [15 ]
Parker, Romy [16 ]
Sabin, Caroline [17 ]
Slawek, Deepika [18 ]
Tsui, Judith I. [19 ]
Merlin, Jessica S. [20 ]
机构
[1] Icahn Sch Med Mt Sinai, Dept Neurol, New York, NY USA
[2] NYU, Vilcek Inst Grad Biomed Sci, Grossman Sch Med, New York, NY USA
[3] Univ Witwatersrand, Fac Hlth Sci, Sch Physiol, Brain Funct Res Grp, Johannesburg, South Africa
[4] Kings Coll London, Inst Psychiat Psychol & Neurosci, Hlth Psychol Sect, London, England
[5] Guys & St Thomas NHS Fdn Trust, INPUT Pain Unit, London, England
[6] British HIV Assoc BHIVA, London, England
[7] Univ Toronto, Temerty Fac Med, Dept Phys Therapy, Toronto, ON, Canada
[8] Univ Toronto, Rehabil Sci Inst RSI, Toronto, ON, Canada
[9] Univ Toronto, Dalla Lana Sch Publ Hlth, Inst Hlth Policy Management & Evaluat IHPME, Toronto, ON, Canada
[10] Canadian HIV AIDS & Chron Pain Soc, Ottawa, ON, Canada
[11] Brown Univ, Sch Med, Providence, RI USA
[12] Yale Sch Med & Publ Hlth, New Haven, CT USA
[13] Royal Holloway Univ London, Dept Psychol, Egham, England
[14] Washington Univ, Sch Med, Dept Anesthesiol, St Louis, MO USA
[15] Kings Coll London, Cicely Saunders Inst, Florence Nightingale Fac Nursing Midwifery & Palli, London, England
[16] Univ Cape Town, Fac Hlth Sci, Dept Anaesthesia & Perioperat Med, Cape Town, South Africa
[17] UCL, Inst Global Hlth, London, England
[18] Montefiore Med Ctr, Albert Einstein Coll Med, Bronx, NY USA
[19] Univ Washington, Sch Med, Seattle, WA USA
[20] Univ Pittsburgh, CHAllenges Managing & Preventing Pain CHAMPP Clin, Dept Med, Div Gen Internal Med, Pittsburgh, PA USA
[21] Icahn Sch Med Mt Sinai, Dept Neurol, Box 1052,One Gustave L Levy Pl, New York, NY 10029 USA
来源
AIDS CARE-PSYCHOLOGICAL AND SOCIO-MEDICAL ASPECTS OF AIDS/HIV | 2024年 / 36卷 / 09期
关键词
HIV; chronic pain; research priorities; pain treatment; patient engagement; SDG 3: Good health and well-being; GOODNESS-OF-FIT; CHRONIC NONCANCER PAIN; PRIMARY-CARE; DISORDERS; OPIOIDS; TESTS;
D O I
10.1080/09540121.2024.2334358
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
The Global Task Force on Chronic Pain in HIV published seven research priorities in the field of HIV-associated chronic pain in 2019: (1) causes; (2) management; (3) treatment individualization and integration with addiction treatment; (4) mental and social health factors; (5) prevalence; (6) treatment cost effectiveness; and (7) prevention. The current study used a web-based survey to determine whether the research topics were aligned with the priorities of adults with lived experiences of HIV and chronic pain. We also collected information about respondents' own pain and treatment experiences. We received 311 survey responses from mostly US-based respondents. Most respondents reported longstanding, moderate to severe, multisite pain, commonly accompanied by symptoms of anxiety and/or depression. The median number of pain treatments tried was 10 (IQR = 8, 13), with medications and exercise being the most common modalities, and opioids being viewed as the most helpful. Over 80% of respondents considered all research topics either "extremely important" or "very important". Research topic #2, which focused on optimizing management of pain in people with HIV, was accorded the greatest importance by respondents. These findings suggest good alignment between the priorities of researchers and US-based people with lived experience of HIV-associated chronic pain.
引用
收藏
页码:1291 / 1301
页数:11
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