Not Another Medication Adherence App

被引:14
作者
Maestre J.F. [1 ]
Zdziarska P. [1 ]
Min A. [1 ]
Baglione A.N. [2 ]
Chung C.-F. [1 ]
Shih P.C. [1 ]
机构
[1] Indiana University, Bloomington, IN
[2] University of Virginia, Charlottesville, VA
来源
| 1600年 / Association for Computing Machinery卷 / 04期
关键词
coping strategy; hiv-related stigma; intimacy; peer-to-peer support; people living with hiv; social support; stigma; stigma tensions; privacy; technology for stigma;
D O I
10.1145/3434171
中图分类号
学科分类号
摘要
People living with HIV experience a high level of stigma in our society. Public HIV-related stigma often leads to anxiety and depression and hinders access to social support and proper medical care. Technologies for HIV, however, have been mainly designed for treatment management and medication adherence rather than for helping people cope with public HIV-related stigma specifically. Drawing on empirical data obtained from semi-structured interviews and design activities with eight social workers and 29 people living with HIV, we unpack the ways in which needs for privacy and trust, intimacy, and social support create tensions around key coping strategies. Reflecting on these tensions, we present design implications and opportunities to empower people living with HIV to cope with public HIV-related stigma at the individual level. © 2021 ACM.
引用
收藏
相关论文
共 124 条
[71]  
Min A., Currin F., Razo G., Connelly K., Shih P.C., Can i Take a Break? Facilitating In-Home Respite Care for Family Caregivers of Older Adults, American Medical Informatics Association Annual Symposium Proceedings, (2020)
[72]  
Min A., Lee D., Gao G., Jeong S., Shih P.C., Design and assessment of a personal breathalyzer intervention to support responsible drinking, International Journal of Human Computer Studies, 137, (2020)
[73]  
Mo P.Kh, Coulson N.S., Empowering processes in online support groups among people living with HIV/AIDS: A comparative analysis of 'lurkers' and 'posters, Computers in Human Behavior, 26, 5, pp. 1183-1193, (2010)
[74]  
Mo P.Kh, Coulson N.S., Online support group use and psychological health for individuals living with HIV/AIDS, Patient Education and Counseling, 93, 3, pp. 426-432, (2013)
[75]  
Mohr D., Cuijpers P., Lehman K., Supportive accountability: A model for providing human support to enhance adherence to eHealth interventions, Journal of Medical Internet Research, 13, 1, (2011)
[76]  
Vivian Nagele L., Ryoppy M., Wilde D., PDFi: Participatory design fiction with vulnerable users, Proceedings of the 10th Nordic Conference on Human-Computer Interaction. ACM, pp. 819-831, (2018)
[77]  
Nahum-Shani I., Shawna N., S.bonnie S.J., Linda M., Katie Witkiewitz C., Tewari A., Murphy S.A., Just-in-Time Adaptive Interventions (JITAIs) in Mobile Health: Key Components and Design Principles for Ongoing Health Behavior Support, Annals of Behavioral Medicine, (2016)
[78]  
Addressing Stigma: A Blueprint for Improving HIV/STD Prevention and Care Outcomes for Black and Latino Gay Men
[79]  
Natarajan M., Parikh T., Understanding Barriers to Information Access and Disclosure for HIV+ Women, pp. 143-152
[80]  
Noortman R., Schulte B.F., Marshall P., Bakker S., Cox A.L., HawkEye-Deploying a Design Fiction Probe, Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. ACM, 422, (2019)