Not Another Medication Adherence App

被引:14
作者
Maestre J.F. [1 ]
Zdziarska P. [1 ]
Min A. [1 ]
Baglione A.N. [2 ]
Chung C.-F. [1 ]
Shih P.C. [1 ]
机构
[1] Indiana University, Bloomington, IN
[2] University of Virginia, Charlottesville, VA
来源
| 1600年 / Association for Computing Machinery卷 / 04期
关键词
coping strategy; hiv-related stigma; intimacy; peer-to-peer support; people living with hiv; social support; stigma; stigma tensions; privacy; technology for stigma;
D O I
10.1145/3434171
中图分类号
学科分类号
摘要
People living with HIV experience a high level of stigma in our society. Public HIV-related stigma often leads to anxiety and depression and hinders access to social support and proper medical care. Technologies for HIV, however, have been mainly designed for treatment management and medication adherence rather than for helping people cope with public HIV-related stigma specifically. Drawing on empirical data obtained from semi-structured interviews and design activities with eight social workers and 29 people living with HIV, we unpack the ways in which needs for privacy and trust, intimacy, and social support create tensions around key coping strategies. Reflecting on these tensions, we present design implications and opportunities to empower people living with HIV to cope with public HIV-related stigma at the individual level. © 2021 ACM.
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共 124 条
[11]  
Braun V., Clarke V., Using thematic analysis in psychology, Qualitative Research in Psychology, 3, 2, pp. 77-101, (2006)
[12]  
Burke M., Kraut R., Using Facebook after losing a job: Differential benefits of strong and weak ties, Proceedings of the 2013 Conference on Computer Supported Cooperative Work. ACM, pp. 1419-1430, (2013)
[13]  
Bussone A., Stumpf S., Buchanan G., It feels like i'm managing myself: Hiv+ people tracking their personal health information, Proceedings of the 9th Nordic Conference on Human-Computer Interaction., pp. 1-10, (2016)
[14]  
On the Fast-Track to End AIDS by 2030: Focus on Location and Population, (2018)
[15]  
Chancellor S., Lin Z., De Choudhury M., This Post Will Just Get Taken Down" Characterizing Removed Pro-Eating Disorder Social Media Content, Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems, pp. 1157-1162, (2016)
[16]  
Chancellor S., Mitra T., De Choudhury M., Recovery amid pro-anorexia: Analysis of recovery in social media, Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. ACM, pp. 2111-2123, (2016)
[17]  
Chancellor S., Annette Pater J., Clear T., Gilbert E., De Choudhury M., # thyghgapp: Instagram content moderation and lexical variation in pro-eating disorder communities, Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing, pp. 1201-1213, (2016)
[18]  
Charmaz K., Constructing Grounded Theory., (2014)
[19]  
Chesney M.A., Smith A.W., Critical delays in HIV testing and care: The potential role of stigma, American Behavioral Scientist, 42, 7, pp. 1162-1174, (1999)
[20]  
Consolvo S., McDonald D.W., Landay J.A., Theory-driven design strategies for technologies that support behavior change in everyday life, Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, pp. 405-414, (2009)