Not Another Medication Adherence App

被引:14
作者
Maestre J.F. [1 ]
Zdziarska P. [1 ]
Min A. [1 ]
Baglione A.N. [2 ]
Chung C.-F. [1 ]
Shih P.C. [1 ]
机构
[1] Indiana University, Bloomington, IN
[2] University of Virginia, Charlottesville, VA
来源
| 1600年 / Association for Computing Machinery卷 / 04期
关键词
coping strategy; hiv-related stigma; intimacy; peer-to-peer support; people living with hiv; social support; stigma; stigma tensions; privacy; technology for stigma;
D O I
10.1145/3434171
中图分类号
学科分类号
摘要
People living with HIV experience a high level of stigma in our society. Public HIV-related stigma often leads to anxiety and depression and hinders access to social support and proper medical care. Technologies for HIV, however, have been mainly designed for treatment management and medication adherence rather than for helping people cope with public HIV-related stigma specifically. Drawing on empirical data obtained from semi-structured interviews and design activities with eight social workers and 29 people living with HIV, we unpack the ways in which needs for privacy and trust, intimacy, and social support create tensions around key coping strategies. Reflecting on these tensions, we present design implications and opportunities to empower people living with HIV to cope with public HIV-related stigma at the individual level. © 2021 ACM.
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共 124 条
[1]  
Andalibi N., What Happens after Disclosing Stigmatized Experiences on Identified Social Media: Individual, Dyadic, and Social/Network Outcomes, Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. ACM, 137, (2019)
[2]  
Andalibi N., Forte A., Announcing pregnancy loss on Facebook: A decision-making framework for stigmatized disclosures on identified social network sites, Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems., pp. 1-14, (2018)
[3]  
Baglione A.N., Girard M.M., Price M., Clawson J., Shih P.C., Modern bereavement: A model for complicated grief in the digital age, Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems, pp. 1-12, (2018)
[4]  
Bardzell J., Bardzell S., What is critical about critical design?, Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, pp. 3297-3306, (2013)
[5]  
Barroso J., Relf M.V., Scull Williams M., Arscott J., Moore E.D., Caiola C., Silva S.G., A randomized controlled trial of the efficacy of a stigma reduction intervention for HIV-infected women in the Deep South, AIDS Patient Care and STDs, 28, 9, pp. 489-498, (2014)
[6]  
Bauermeister J.A., Muessig K.E., Legrand S., Flores D.D., Choi S.K., Dong W., Sallabank G., Hightow-Weidman L.B., HIV and sexuality stigma reduction through engagement in online forums: Results from the HealthMPowerment intervention, AIDS and Behavior, 23, 3, pp. 742-752, (2019)
[7]  
Barbara E., Carol Estwing Ferrans B., Lashley F.R., Measuring Stigma in People with HIV: Psychometric Assessment of the HIV Stigma Scale, 24, 6, pp. 518-529
[8]  
Berger M., Wagner T.H., Baker L.C., Internet use and stigmatized illness, Social Science & Medicine, 61, 8, pp. 1821-1827, (2005)
[9]  
Perry Black B., Shandor Miles M., Calculating the risks and benefits of disclosure in African American women who have HIV, Journal of Obstetric, Gynecologic, & Neonatal Nursing, 31, pp. 688-697, (2002)
[10]  
Bockting W.O., Miner M.H., Romine Swinburne R.E., Hamilton A., Coleman E., Stigma, mental health, and resilience in an online sample of the US transgender population, American Journal of Public Health, 103, 5, pp. 943-951, (2013)