Telehealth Services for an Adolescent with Duchenne Muscular Dystrophy (DMD) During the COVID-19 Pandemic

被引:1
作者
Sadasivan, Arun [1 ]
Warrier, Manjusha G. [2 ]
Vengalil, Seena [3 ]
Thomas, Priya Treesa [4 ]
Nalini, Atchayaram [3 ]
机构
[1] Sampurna Montfort Coll, Bangalore, India
[2] CHRIST Univ, Dept Psychol, Bangalore, India
[3] NIMHANS, Dept Neurol, Bangalore, India
[4] NIMHANS, Dept Psychiat Social Work, Bangalore, India
关键词
Case Management; Adolescents; DMD; Duchenne Muscular Dystrophy; Telehealth; COVID-19; Pandemic; Psychosocial Care; Co-ordinated Interventions; Multidisciplinary Care; Social Work; Low-Resource Settings; Palliative Care; Neuropalliative Care; PALLIATIVE CARE;
D O I
10.1080/0312407X.2024.2340469
中图分类号
C916 [社会工作、社会管理、社会规划];
学科分类号
1204 ;
摘要
The neuropalliative approach in a hospital setting for neuromuscular disorders is essentially multidisciplinary in focus and involves co-ordinated interventions. This case report describes an intensive case management approach through telehealth services provided from a hospital context in South India for psychosocial interventions for an adolescent with Duchenne Muscular Dystrophy. Case management interventions during the COVID-19 pandemic were provided through sixteen sessions over the telephone, focusing on need assessment, service plan development, implementation, co-ordination, and monitoring. Major strategies were crisis management, supportive psychotherapy, and cognitive-behavioural strategies. Adaptations made to meet the challenges of the COVID-19 pandemic using telehealth facilities can be incorporated into routine clinical practice in low-resource settings.
引用
收藏
页码:108 / 114
页数:7
相关论文
共 50 条
[41]   The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic [J].
Veerapandiyan, Aravindhan ;
Wagner, Kathryn R. ;
Apkon, Susan ;
McDonald, Craig M. ;
Mathews, Katherine D. ;
Parsons, Julie A. ;
Wong, Brenda L. ;
Eichinger, Katy ;
Shieh, Perry B. ;
Butterfield, Russell J. ;
Rao, Vamshi K. ;
Smith, Edward C. ;
Proud, Crystal M. ;
Connolly, Anne M. ;
Ciafaloni, Emma .
MUSCLE & NERVE, 2020, 62 (01) :41-45
[42]   THERAPEUTIC TARGETS FOR DUCHENNE MUSCULAR DYSTROPHY (DMD) [J].
Brown, A. E. ;
Sorbera, L. A. .
DRUGS OF THE FUTURE, 2013, 38 (06) :395-406
[43]   Quality of Telehealth-Delivered Inpatient Palliative Care During the Early COVID-19 Pandemic [J].
Soliman, Ann A. ;
Akgun, Kathleen M. ;
Coffee, Jane ;
Kapo, Jennifer ;
Morrison, Laura J. ;
Hopkinson, Elizabeth ;
Schulman-Green, Dena ;
Feder, Shelli L. .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2023, 65 (01) :6-15
[44]   Telehealth in cancer care: during and beyond the COVID-19 pandemic [J].
Burbury, Kate ;
Wong, Zee-Wan ;
Yip, Desmond ;
Thomas, Huw ;
Brooks, Peter ;
Gilham, Leslie ;
Piper, Amanda ;
Solo, Ilana ;
Underhill, Craig .
INTERNAL MEDICINE JOURNAL, 2021, 51 (01) :125-133
[45]   Telehealth Sustainability in a Neurosurgery Department During the COVID-19 Pandemic [J].
Chau, Monica J. ;
Quintero, Jorge E. ;
Guiliani, Ashley ;
Hines, Tripp ;
Samaan, Christopher ;
Seybold, Katie ;
Stowe, Matthew ;
Hanlon, Dean ;
Gerhardth, Greg A. ;
Horne, Craig G. van .
WORLD NEUROSURGERY, 2021, 152 :E617-E624
[46]   Transplant Pharmacists' Experience With Telehealth During the COVID-19 Pandemic [J].
Khalil, Karen ;
Tsapepas, Demetra ;
West-Thielke, Patricia .
JOURNAL OF PHARMACY PRACTICE, 2024, 37 (02) :307-310
[47]   Do Hospitals Need to Extend Telehealth Services? An Experimental Study of Different Telehealth Modalities during the COVID-19 Pandemic [J].
Esmaeilzadeh, Pouyan ;
Mirzaei, Tala .
METHODS OF INFORMATION IN MEDICINE, 2021, 60 (03/04) :71-83
[48]   Use of Telehealth During the COVID-19 Pandemic: Scoping Review [J].
Doraiswamy, Sathyanarayanan ;
Abraham, Amit ;
Mamtani, Ravinder ;
Cheema, Sohaila .
JOURNAL OF MEDICAL INTERNET RESEARCH, 2020, 22 (12)
[49]   INCLUSION, DIVERSITY OR DISPARITY IN TELEHEALTH DURING THE COVID-19 PANDEMIC [J].
Dvoryashina, M. ;
Tarasenko, E. .
IFAC PAPERSONLINE, 2021, 54 (13) :323-326
[50]   Rapid creation of an emergency department telehealth program during the COVID-19 pandemic [J].
Heslin, Samita M. ;
Nappi, Michael ;
Kelly, Gerald ;
Crawford, Joan ;
Morley, Eric J. ;
Lingam, Veena ;
Henry, Mark ;
Viccellio, Peter .
JOURNAL OF TELEMEDICINE AND TELECARE, 2022, 28 (03) :207-212