Health Equity and Children With Medical Complexity/ Children and Youth With Special Health Care Needs: A Scoping Review

被引:5
作者
Flasch, Elizabeth A. [1 ]
机构
[1] Marquette Univ, Coll Nursing, 510 N. 16th St, Milwaukee, WI 53233 USA
关键词
Children and youth with special health care needs; children with medical complexity; health inequity; health equity; health disparities;
D O I
10.1016/j.pedhc.2023.07.007
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
A scoping review was conducted to systematically map the research on children with medical complexity and children and youth with special health care needs (CYSHCN) surrounding health equity. Fifteen articles were reviewed with focus on: access to care, quality of life and well-being, and insurance challenges/financing. Findings suggest CYSHCN require more and different types of services than those for typically developing children and youth, yet the current system is not ensuring access to these services. It is important to understand the unique perspectives, challenges, and opportunities of and for this population to better inform policy, research, and practice. J Pediatr Health Care. (2024) 38, 210-218
引用
收藏
页码:210 / 218
页数:9
相关论文
共 22 条
[1]   Families of Children With Medical Complexity: A View From the Front Lines [J].
Allshouse, Carolyn ;
Comeau, Meg ;
Rodgers, Rylin ;
Wells, Nora .
PEDIATRICS, 2018, 141 :S195-S201
[2]   The Eye of the Beholder: A Discussion of Value and Quality From the Perspective of Families of Children and Youth With Special Health Care Needs [J].
Anderson, Betsy ;
Beckett, Julie ;
Wells, Nora ;
Comeau, Meg .
PEDIATRICS, 2017, 139 :S99-S108
[3]  
[Anonymous], 2022, Children and Youth with Special Health Care Needs about the NSCH
[4]   Statement of the Problem: Health Reform, Value-Based Purchasing, Alternative Payment Strategies, and Children and Youth With Special Health Care Needs [J].
Bachman, Sara S. ;
Comeau, Meg ;
Long, Thomas F. .
PEDIATRICS, 2017, 139 :S89-S98
[5]   Family challenges in personal transportation of children with medical complexity [J].
Batson, Lora ;
Donohue, Pamela K. ;
Boss, Renee D. ;
Seltzer, Rebecca R. .
JOURNAL OF PEDIATRIC REHABILITATION MEDICINE, 2022, 15 (04) :655-665
[6]   Ways to Identify Children with Medical Complexity and the Importance of Why [J].
Berry, Jay G. ;
Hall, Matt ;
Cohen, Eyal ;
O'Neill, Margaret ;
Feudtner, Chris .
JOURNAL OF PEDIATRICS, 2015, 167 (02) :229-237
[7]  
Bowden V.R., 2022, Pediatric Nursing, V48, P97
[8]   Quality of Life and Well-Being for Children and Youth With Special Health Care Needs and their Families: A Vision for the Future [J].
Coleman, Cara L. ;
Morrison, Mia ;
Perkins, Sarah K. ;
Brosco, Jeffrey P. ;
Schor, Edward L. .
PEDIATRICS, 2022, 149
[9]   Medical Complexity among Children with Special Health Care Needs: A Two-Dimensional View [J].
Coller, Ryan J. ;
Lerner, Carlos F. ;
Eickhoff, Jens C. ;
Klitzner, Thomas S. ;
Sklansky, Daniel J. ;
Ehlenbach, Mary ;
Chung, Paul J. .
HEALTH SERVICES RESEARCH, 2016, 51 (04) :1644-1669
[10]   Telehealth: Opportunities to Improve Access, Quality, and Cost in Pediatric Care [J].
Curfman, Alison ;
Hackell, Jesse M. ;
Herendeen, Neil E. ;
Alexander, Joshua ;
Marcin, James P. ;
Moskowitz, William B. ;
Bodnar, Chelsea E. F. ;
Simon, Harold K. ;
McSwain, S. David .
PEDIATRICS, 2022, 149 (03)