"Being a caregiver has changed my life": the experience of family caregivers caring for a loved one in the first episode of psychosis

Aim: Distress and confusion when caring for patients in the First Episode of Psychosis (FEP) will affect family caregiving roles and quality of life. The aim of this study was to explore caregivers' experiences in caring for patients in the FEP. Design: A qualitative design with a phenomenological approach was conducted to uncover the uniqueness of each individual's experience. Methods: Participant selection was conducted through purposive sampling, involving 12 family caregivers. Data collection was carried out through in-depth interviews and then analyzed using the Content Analysis method. Results: Caregivers expressed responses in the form of blaming, Expressed Emotion (EE) responses, and help-seeking responses, with most participants combining alternative and medical treatments. Financial issues, psychological issues, perceived stigma, and disruptions in daily activities were changes caregivers experienced while providing care. However, caregivers found strength from internal motivation through prayer and external support from neighbors, extended family, and local government. Conclusion: Participants experienced distress and changes in various aspects of their lives when caring for family members in the first episode of psychosis. Education and family intervention are essential to address the needs of families, including their psychological needs.