Comparing Caregiving Outcomes Among Male and Female Parents of Autistic Adults

被引:0
作者
Marsack-Topolewski, Christina N. [1 ]
Mcginley, Jacqueline M. [2 ]
机构
[1] Eastern Michigan Univ, 206 H Marshall, Ypsilanti, MI 48197 USA
[2] Binghamton Univ, Binghamton, NY USA
来源
FAMILIES IN SOCIETY-THE JOURNAL OF CONTEMPORARY SOCIAL SERVICES | 2024年
关键词
aging parents; autism; caregiver burden; self-reported health; quality of life; social support; QUALITY-OF-LIFE; SPECTRUM DISORDER; GENDER-DIFFERENCES; FAMILY CAREGIVERS; BURDEN INVENTORY; SERVICE NEEDS; CHILDREN; CARE; EXPERIENCES; IMPACT;
D O I
10.1177/10443894241233328
中图分类号
D669 [社会生活与社会问题]; C913 [社会生活与社会问题];
学科分类号
1204 ;
摘要
This study compared aging male and female parents of autistic adults to determine if self-reported caregiver health, quality of life, caregiver burden, informal social support, and formal social support differ between the two groups. Fifty-seven female caregivers and 57 male caregivers were selected using data from a larger study. T-tests for independent samples compared dependent variables between female and male parents. Statistically significant differences were found on four dependent variables, self-reported health, quality of life, overall caregiver burden, and emotional burden. Male parents had better self-reported health, greater quality of life, and less emotional burden, while female parents experienced greater overall caregiver burden. Social workers and other professionals should be cognizant of differences experienced by aging caregivers when providing tailored support and services.
引用
收藏
页数:15
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共 80 条
[1]  
American Association of Retired Persons, 2023, WHAT IS AARPS MEMBER
[2]   Young Adults on the Autism Spectrum: The Struggle for Appropriate Services [J].
Anderson, Connie ;
Butt, Catherine .
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2018, 48 (11) :3912-3925
[3]   The emotional availability in mother-child and father-child interactions in families with children with Autism Spectrum Disorder [J].
Bentenuto, Arianna ;
Perzolli, Silvia ;
de Falco, Simona ;
Venuti, Paola .
RESEARCH IN AUTISM SPECTRUM DISORDERS, 2020, 75
[4]   The combined impact of social support and perceived stress on quality of life in adults with autism spectrum disorder and without intellectual disability [J].
Bishop-Fitzpatrick, Lauren ;
Mazefsky, Carla A. ;
Eack, Shaun M. .
AUTISM, 2018, 22 (06) :703-711
[5]   (Unpacking) father involvement in the context of childhood neurodisability research: a scoping review [J].
Bogossian, Aline ;
King, Gillian ;
Lach, Lucyna M. ;
Currie, Melissa ;
Nicholas, David ;
McNeill, Ted ;
Saini, Michael .
DISABILITY AND REHABILITATION, 2019, 41 (01) :110-124
[6]   The Impact of Informal Caregiving for Older Adults on the Health of Various Types of Caregivers: A Systematic Review [J].
Bom, Judith ;
Bakx, Pieter ;
Schut, Frederik ;
van Doorslaer, Eddy .
GERONTOLOGIST, 2019, 59 (05) :E629-E642
[7]   Trends in the Prevalence of Autism Spectrum Disorder, Cerebral Palsy, Hearing Loss, Intellectual Disability, and Vision Impairment, Metropolitan Atlanta, 1991-2010 [J].
Braun, Kim Van Naarden ;
Christensen, Deborah ;
Doernberg, Nancy ;
Schieve, Laura ;
Rice, Catherine ;
Wiggins, Lisa ;
Schendel, Diana ;
Yeargin-Allsopp, Marshalyn .
PLOS ONE, 2015, 10 (04)
[8]   The inclusion of fathers in investigations of autistic spectrum disorders [J].
Braunstein, Valerie L. ;
Peniston, Nicole ;
Perelman, Andrea ;
Cassano, Michael C. .
RESEARCH IN AUTISM SPECTRUM DISORDERS, 2013, 7 (07) :858-865
[9]   Disparities in Unmet Service Needs Among Adults with Intellectual and Other Developmental Disabilities [J].
Burke, Meghan M. ;
Heller, Tamar .
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2017, 30 (05) :898-910
[10]   Health status of caregivers of children with cerebral palsy [J].
Byrne, M. B. ;
Hurley, D. A. ;
Daly, L. ;
Cunningham, C. G. .
CHILD CARE HEALTH AND DEVELOPMENT, 2010, 36 (05) :696-702