The Australian Traumatic Brain Injury Initiative: Single Data Dictionary to Predict Outcome for People With Moderate-Severe Traumatic Brain Injury

被引：5

作者：

Fitzgerald, Melinda ^{[1
,3
,22
]}

Ponsford, Jennie L. ^{[4
,8
]}

Hill, Regina ^{[9
]}

Rushworth, Nick ^{[7
]}

Kendall, Elizabeth ^{[11
]}

Armstrong, Elizabeth ^{[12
]}

Gilroy, John ^{[13
]}

Bullen, Jonathan ^{[2
,21
]}

Keeves, Jemma ^{[1
,3
,5
]}

Bagg, Matthew K. ^{[1
,3
,14
,15
]}

Hellewell, Sarah C. ^{[1
,3
]}

Lannin, Natasha A. ^{[6
,16
]}

O'Brien, Terence J. ^{[6
]}

Cameron, Peter A. ^{[5
,17
,18
]}

Cooper, D. Jamie ^{[5
,10
,19
]}

Gabbe, Belinda J. ^{[5
,20
]}

机构：

[1] Curtin Univ, Fac Hlth Sci, Curtin Hlth Innovat Res Inst, Bentley, WA, Australia

[2] Curtin Univ, Educ, Bentley, WA, Australia

[3] Perron Inst Neurol & Translat Sci, Nedlands, WA, Australia

[4] Monash Univ, Sch Psychol Sci, Melbourne, Vic, Australia

[5] Monash Univ, Sch Publ Hlth & Prevent Med, Melbourne, Vic, Australia

[6] Monash Univ, Sch Translat Med, Dept Neurosci, Melbourne, Vic, Australia

[7] Brain Injury Australia, Sydney, NSW, Australia

[8] Epworth Healthcare, Monash Epworth Rehabil Res Ctr, Melbourne, Vic, Australia

[9] Regina Hill Effect Consulting Pty Ltd, Melbourne, Vic, Australia

[10] Monash Univ, Australian & New Zealand Intens Care Res Ctr, Melbourne, Vic, Australia

[11] Griffith Univ, Hopkins Ctr, Brisbane, Qld, Australia

[12] Edith Cowan Univ, Sch Med & Hlth Sci, Perth, WA, Australia

[13] Univ Sydney, Fac Med & Hlth, Aboriginal & Torres Strait Islander Res, Sydney, NSW, Australia

[14] Ctr Pain IMPACT, Neurosci Res Australia, Sydney, NSW, Australia

[15] Univ Notre Dame Australia, Sch Hlth Sci, Fremantle, WA, Australia

[16] Alfred Hlth, Melbourne, Vic, Australia

[17] Natl Trauma Res Inst, Melbourne, Vic, Australia

[18] Alfred Hosp, Emergency & Trauma Ctr, Melbourne, Vic, Australia

[19] Alfred Hosp, Dept Intens Care & Hyperbar Med, Melbourne, Vic, Australia

[20] Swansea Univ, Med Sch, Hlth Data Res UK, Singleton Pk, Swansea, Wales

[21] Telethon Kids Inst, Perth, WA, Australia

[22] Curtin Univ, Ralph & Patricia Sarich Neurosci Res Inst, Neurosci Lab, Level 3,8 Verdun St, Nedlands, WA 6009, Australia

来源：

JOURNAL OF NEUROTRAUMA | 2024年

关键词：

brain injuries; traumatic; common data elements; outcome assessment; health care; PATIENT;

D O I：

10.1089/neu.2023.0467

中图分类号：

R4 [临床医学];

学科分类号：

1002 ; 100602 ;

摘要：

In this series of eight articles, the Australian Traumatic Brain Injury Initiative (AUS-TBI) consortium describes the Australian approach used to select the common data elements collected acutely that have been shown to predict outcome following moderate-severe traumatic brain injury (TBI) across the lifespan. This article presents the unified single data dictionary, together with additional measures chosen to facilitate comparative effectiveness research and data linkage. Consultations with the AUS-TBI Lived Experience Expert Group provided insights on the merits and considerations regarding data elements for some of the study areas, as well as more general principles to guide the collection of data and the selection of meaningful measures. These are presented as a series of guiding principles and themes. The AUS-TBI Aboriginal and Torres Strait Islander Advisory Group identified a number of key points and considerations for the project approach specific to Aboriginal and Torres Strait Islander peoples, including key issues of data sovereignty and community involvement. These are outlined in the form of principles to guide selection of appropriate methodologies, data management, and governance. Implementation of the AUS-TBI approach aims to maximize ongoing data collection and linkage, to facilitate personalization of care and improved outcomes for people who experience moderate-severe TBI. [GRAPHICS] .

引用

页数：18

共 42 条

[31] Prognosis of Six-Month Glasgow Outcome Scale in Severe Traumatic Brain Injury Using Hospital Admission Characteristics, Injury Severity Characteristics, and Physiological Monitoring during the First Day Post-Injury [J].