The lived experience of mothers living with fibromyalgia syndrome: A phenomenological inquiry

被引:2
作者
Lo Monaco, Marika [1 ,2 ]
Alblooshi, Sharifa [3 ]
Bocchio, Raffaella Mallaci [2 ]
Natoli, Giuseppe [2 ]
Landa, Maria Luisa [4 ]
Corrao, Salvatore [1 ,2 ]
机构
[1] Univ Palermo, Dept Hlth Promot Sci Maternal & Infant Care Intern, I-90133 Palermo, Italy
[2] Natl Relevance & High Specializat Hosp Trust ARNAS, Dept Clin Med, Internal Med Unit Rheumatol Dermatol Diabetol & Te, Palermo, Italy
[3] Zayed Univ, Coll Nat & Hlth Sci, Dept Hlth Sci, Dubai, U Arab Emirates
[4] Maddalena Hosp, Palermo, Italy
关键词
fibromyalgia; mothering; nursing; pain; phenomenology; qualitative; MANAGEMENT; DIAGNOSIS; PAIN;
D O I
10.1002/msc.1889
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
IntroductionFibromyalgia syndrome (FMS) is a complex chronic pain condition that negatively impacts women's daily lives, particularly their roles as mothers and wives. A phenomenological qualitative study was conducted to explore the lived experiences of motherhood and daily life among women diagnosed with fibromyalgia.MethodsA sample of 10 women affected by FMS was recruited between January and February 2020. Participants were interviewed in a face-to-face, in-depth interview using a semi-structured interview guide. Data were collected until saturation, and Colaizzi's method was used to analyse data.ResultsThis qualitative analysis identified five themes: A trauma preceding diagnosis, Pervasive feelings of misunderstanding, A struggle to maintain strength among limitations, Challenges in fulfilling maternal roles, and Persistent sexual discomfort. The latter two themes emerged as the most prominent.ConclusionThese findings highlight the significant impact of fibromyalgia on women's family lives and suggest the need for a more comprehensive care programme.
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页数:8
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