An International, Multidisciplinary Consensus Set of Patient-Centered Outcome Measures for Substance-Related and Addictive Disorders

被引：8

作者：

Black, Nicola ^{[1
]}

Chung, Sophie ^{[2
]}

Tisdale, Calvert ^{[1
]}

Fialho, Luz Sousa ^{[2
]}

Aramrattana, Apinun ^{[3
]}

Assanangkornchai, Sawitri ^{[4
]}

Blaszczynski, Alex ^{[5
]}

Bowden-Jones, Henrietta ^{[6
,7
]}

van den Brink, Wim ^{[8
]}

Brown, Adrian ^{[9
]}

Brown, Qiana L. ^{[10
]}

Cottler, Linda B. ^{[11
]}

Elsasser, Maury ^{[12
]}

Ferri, Marica ^{[12
]}

Florence, Maria ^{[13
]}

Gueorguieva, Ralitza ^{[14
]}

Hampton, Ryan ^{[15
]}

Hudson, Suzie ^{[16
]}

Kelly, Peter J. ^{[17
]}

Lintzeris, Nicholas ^{[18
]}

Murphy, Lynette ^{[20
]}

Nadkarni, Abhijit ^{[19
,20
]}

Neale, Joanne ^{[21
]}

Rosen, Daniel ^{[22
]}

Rumpf, Hans-Juergen ^{[23
]}

Rush, Brian ^{[24
]}

Segal, Gabriel ^{[25
]}

Shorter, Gillian W. ^{[26
,27
]}

Torrens, Marta ^{[28
]}

Wait, Christopher ^{[29
]}

Young, Katherine ^{[2
]}

Farrell, Michael ^{[1
]}

机构：

[1] UNSW, Natl Drug & Alcohol Res Ctr, Sydney 2052, Australia

[2] Int Consortium Hlth Outcomes Measurement, London W12 8EU, England

[3] Chiang Mai Univ, Fac Med, Dept Family Med, Chiang Mai 50200, Thailand

[4] Prince Songkla Univ, Fac Med, Dept Epidemiol, Hat Yai 90110, Thailand

[5] Univ Sydney, Fac Sci, Brain & Mind Ctr, Sch Psychol, Sydney 2006, Australia

[6] UCL, Dept Psychiat, London NW1 2AE, England

[7] Univ Cambridge, Dept Psychiat, Cambridge CB2 1QW, England

[8] Univ Amsterdam, Amsterdam Univ Med Ctr, Dept Psychiat, NL-1105 AZ Amsterdam, Netherlands

[9] Cent & North West London Trust, Northwick Pk Hosp, London HA1 3UJ, England

[10] Rutgers State Univ, Sch Social Work, New Brunswick, NJ 08901 USA

[11] Univ Florida, Coll Med & Publ Hlth & Hlth Profess, Dept Epidemiol, Homestead, FL 33031 USA

[12] European Monitoring Ctr Drugs & Drug Addict, Fac Community & Hlth, Dept Psychol, P-1249289 Lisbon, Portugal

[13] Univ Western Cape, Sch Publ Hlth, Dept Biostat, ZA-7535 Cape Town, South Africa

[14] Yale Univ, Sch Publ Hlth, Dept Biostat, New Haven, CT 06511 USA

[15] Voices Project, Las Vegas, NV 89149 USA

[16] Network Alcohol & Other Drugs Agcy, Sydney 2751, Australia

[17] Univ Wollongong, Illawarra Hlth & Med Res Inst, Wollongong, NSW 2522, Australia

[18] Univ Sydney, Fac Med & Hlth, Discipline Addict Med, Sydney, NSW 2006, Australia

[19] Addict & Related Res Grp, Bardez 403501, Goa, India

[20] London Sch Hyg & Trop Med, Ctr Global Mental Hlth, Dept Populat Hlth, London WC1E 7HT, England

[21] Kings Coll London, Addict Dept, London SE1 9NH, England

[22] Univ Pittsburgh, Sch Social Work, Pittsburgh, PA 15213 USA

[23] Univ Lubeck, Translat Psychiat Unit, D-23562 Lubeck, Germany

[24] Ctr Addict & Mental Hlth, Inst Mental Hlth Policy Res, Toronto M6J 1H4, ON, Canada

[25] Kings Coll London, Dept Philosophy, London SE1 9NH, England

[26] Queens Univ Belfast, Drug & Alcohol Res Network, Sch Psychol, Belfast BT9 5AJ, North Ireland

[27] Ulster Univ, Inst Mental Hlth Sci, Coleraine BT52 1SA, North Ireland

[28] Hosp del Mar, Addict Serv, Barcelona 08003, Spain

[29] Build Belief, London SW5 9HB, England

来源：

JOURNAL OF CLINICAL MEDICINE | 2024年 / 13卷 / 07期

关键词：

consensus set; outcome measures; patient-centered; Delphi; substance use; addictive disorders; addiction; gaming disorder; gambling disorder; ICHOM; core outcome set; EFFECTIVENESS TRIALS; ITEM BANKS; ALCOHOL; EFFICACY; SYSTEM; IMPLEMENTATION; INTERVENTIONS; VALIDATION; PREDICTORS; FRAMEWORK;

D O I：

10.3390/jcm13072154

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

Background: In 1990, the United States' Institute of Medicine promoted the principles of outcomes monitoring in the alcohol and other drugs treatment field to improve the evidence synthesis and quality of research. While various national outcome measures have been developed and employed, no global consensus on standard measurement has been agreed for addiction. It is thus timely to build an international consensus. Convened by the International Consortium for Health Outcomes Measurement (ICHOM), an international, multi-disciplinary working group reviewed the existing literature and reached consensus for a globally applicable minimum set of outcome measures for people who seek treatment for addiction. Methods: To this end, 26 addiction experts from 11 countries and 5 continents, including people with lived experience (n = 5; 19%), convened over 16 months (December 2018-March 2020) to develop recommendations for a minimum set of outcome measures. A structured, consensus-building, modified Delphi process was employed. Evidence-based proposals for the minimum set of measures were generated and discussed across eight videoconferences and in a subsequent structured online consultation. The resulting set was reviewed by 123 professionals and 34 people with lived experience internationally. Results: The final consensus-based recommendation includes alcohol, substance, and tobacco use disorders, as well as gambling and gaming disorders in people aged 12 years and older. Recommended outcome domains are frequency and quantity of addictive disorders, symptom burden, health-related quality of life, global functioning, psychosocial functioning, and overall physical and mental health and wellbeing. Standard case-mix (moderator) variables and measurement time points are also recommended. Conclusions: Use of consistent and meaningful outcome measurement facilitates carer-patient relations, shared decision-making, service improvement, benchmarking, and evidence synthesis for the evaluation of addiction treatment services and the dissemination of best practices. The consensus set of recommended outcomes is freely available for adoption in healthcare settings globally.

引用

页数：20

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