The CAREPAL-8: a short screening tool for multidimensional family caregiver burden in palliative care

被引:4
作者
Ullrich, Anneke [1 ,2 ]
Bergelt, Corinna [2 ,3 ]
Marx, Gabriella [4 ,5 ]
Daubmann, Anne [6 ]
Benze, Gesine [4 ]
Heine, Julia [4 ]
Dickel, Lisa-Marie [4 ]
Wowretzko, Feline [1 ]
Zhang, Youyou [1 ]
Bokemeyer, Carsten [1 ]
Nauck, Friedemann [4 ]
Oechsle, Karin [1 ]
机构
[1] Univ Med Ctr Hamburg Eppendorf, Dept Oncol Hematol & BMT, Palliat Care Unit, Martinistr 52, D-20246 Hamburg, Germany
[2] Univ Med Ctr Hamburg Eppendorf, Dept Med Psychol, Hamburg, Germany
[3] Univ Med Greifswald, Dept Med Psychol, Greifswald, Germany
[4] Univ Med Ctr Goettingen, Dept Palliat Med, Gottingen, Germany
[5] Univ Med Ctr Hamburg Eppendorf, Dept Gen Practice Primary Care, Hamburg, Germany
[6] Univ Med Ctr Hamburg Eppendorf, Dept Med Biometry & Epidemiol, Hamburg, Germany
来源
BMC PALLIATIVE CARE | 2024年 / 23卷 / 01期
关键词
Screening; Family caregiver; Palliative care; Caregiver burden; Latent class analysis; GENERALIZED ANXIETY DISORDER; ILL CANCER-PATIENTS; QUALITY-OF-LIFE; SOCIAL SUPPORT; UNMET NEEDS; DISTRESS THERMOMETER; END; VALIDATION; VERSION; INSTRUMENTS;
D O I
10.1186/s12904-024-01480-w
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
BackgroundFamily caregivers of terminally ill and dying people do not only experience varying levels but also different dimensions of caregiver-related strain and burden. The aim of the study was to develop a short multidimensional screening tool for the detection of burden in family caregivers in palliative care.MethodsFamily caregivers of cancer patients newly admitted to specialist inpatient palliative care (N = 232) completed questionnaires on psychological burden, quality of life, social support and need fulfillment. A latent class mixture model was used to identify discrete classes of family caregivers related to their multidimensional caregiver burden. Multinomial logistic regression analyses were performed to identify the most predictive items from a set of established questionnaires.ResultsFour latent classes of family caregivers were identified: Currently stable caregivers (37%), Caregivers with unmet needs (20%), Psychologically burdened caregivers (30%), and High-risk caregivers (13%). Each of these classes describes a different risk profile of multidimensional family caregiver burden, although family caregivers exhibit high levels of distress across all classes. From a set of 48 items, we identified eight items that predicted the class membership best. These items represent the items of the novel multidimensional screening tool: The 8-item Screening Tool for Family Caregiver Burden in Palliative Care (CAREPAL-8). Except for social support, the items maintained fidelity to the conceptualization of multidimensional caregiver burden used in this study. A preliminary classification system was developed, which has yet to be validated.ConclusionsThis study represents the first step in the establishment of a practical, self-administered screening tool that might help healthcare providers to tailor caregiver care according to their burden in daily practice. Brevity of the 8-item tool might facilitate its use in routine clinical care.
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页数:13
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