Evaluation and Modification of a Shared Decision-Making Tool for Peanut Allergy Management

被引:1
|
作者
Anagnostou, Aikaterini [1 ]
Yaworsky, Andrew [2 ]
Brova, Monica [2 ]
Ibrahim, Nazifa [2 ]
Kakked, Siddharth [2 ]
Spite, Sasha [3 ]
Duluc, Linette [2 ]
Shields, Alan L. [2 ]
Lee, Tricia [4 ,5 ]
Leonard, Stephanie [6 ,7 ]
Przywara, Kathy [8 ]
Smith, Amelia [9 ]
机构
[1] Texas Childrens Hosp, Baylor Coll Med, Houston, TX USA
[2] Adelphi Values, 1 Lincoln St,Suite 2400, Boston, MA 02111 USA
[3] Calif State Univ San Marcos, San Marcos, CA USA
[4] Emory Univ, Sch Med, Childrens Healthcare Atlanta, Atlanta, GA USA
[5] Amer Coll Allergy Asthma & Immunol, Arlington Hts, IL USA
[6] Univ Calif San Diego, San Diego, CA USA
[7] Rady Childrens Hosp, San Diego, CA USA
[8] Asthma & Allergy Fdn Amer, Arlington, VA USA
[9] Food Allergy & Anaphylaxis Connect Team, Liberty Twp, OH USA
关键词
Peanut allergy; Peanut allergy management; Peanut oral immunotherapy; Pediatrics; Shared decision-making; Patient-provider communication; ORAL IMMUNOTHERAPY; FOOD ALLERGY; DOUBLE-BLIND; SAFETY; EFFICACY; CHILDREN; AR101; CARE;
D O I
10.1007/s11882-024-01146-w
中图分类号
R392 [医学免疫学];
学科分类号
100102 ;
摘要
Purpose of ReviewBased on shared decision-making (SDM) principles, a decision aid was previously developed to help patients, their caregivers, and physicians decide which peanut allergy management approach best suits them. This study refined the decision aid's content to better reflect patients' and caregivers' lived experience.Recent FindingsCurrent standard of care for peanut allergy is avoidance, although peanut oral immunotherapy has been approved by the Food and Drug Administration for use in patients 4-17 years old.SummaryAn advisory board of allergy therapy experts (n = 3) and patient advocates (n = 3) informed modifications to the decision aid. The revised tool underwent cognitive debriefing interviews (CDIs) among adolescents (12-17 years old) with peanut allergy and caregivers of patients 4-17 years old with peanut allergy to evaluate its relevance, understandability, and usefulness. The 20 CDI participants understood the information presented in the SDM tool and reported it was important and relevant. Some revisions were made based on participant feedback. Results support content validity of the Peanut Allergy Treatment SDM Tool.
引用
收藏
页码:303 / 315
页数:13
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