Beyond the Formal Mechanisms o f Public Engagement Communicating Biobanking Research with Other Means

被引:0
作者
Beltrame, Lorenzo [1 ]
Martinelli, Lucia [2 ]
Ampollini, Ilaria [1 ]
机构
[1] Univ Trento, Trento, Italy
[2] MUSE Trento, Trento, Italy
来源
TECNOSCIENZA-ITALIAN JOURNAL OF SCIENCE & TECHNOLOGY STUDIES | 2018年 / 9卷 / 02期
关键词
science museum; art; theater; dialogues; biobanks; public engagement;
D O I
暂无
中图分类号
D58 [社会生活与社会问题]; C913 [社会生活与社会问题];
学科分类号
摘要
In this contribution we explore novel, different ways of promoting public engagement in biomedical research using biobanks. Starting from a discussion about the limits of traditional formal procedures of engaging participants in biobanking activities, the contribution proposes two approaches to public involvement that use the Science Museum as an agora for communicating and representing the complex scientific, societal and ethical issues involved in contemporary biomedical research. The role of museum exhibitions, metaphors and languages of art and theater, as well as other forms of dialogues, are discussed as a way of shaping popular imaginaries about scientific research, in order to complement mechanisms of public engagement with novel forms of stimulating public understanding of scientific research using tissues and genomic data.
引用
收藏
页码:159 / 180
页数:22
相关论文
共 34 条
[1]   The haplotype-resolved genome and epigenome of the aneuploid HeLa cancer cell line [J].
Adey, Andrew ;
Burton, Joshua N. ;
Kitzman, Jacob O. ;
Hiatt, Joseph B. ;
Lewis, Alexandra P. ;
Martin, Beth K. ;
Qiu, Ruolan ;
Lee, Choli ;
Shendure, Jay .
NATURE, 2013, 500 (7461) :207-+
[2]  
Busby H, 2004, GENETIC DATABASES SO, P39
[3]  
Busby H., 2006, SCI CULT-INDIA, V15, P237, DOI [10.1080/09505430600890693, DOI 10.1080/09505430600890693]
[4]   Beyond and within public engagement: a broadened approach to engagement in biobanking [J].
Canada, Jose A. ;
Tupasela, Aaro ;
Snell, Karoliina .
NEW GENETICS AND SOCIETY, 2015, 34 (04) :355-376
[5]   Solidarity and equity: new ethical frameworks for genetic databases [J].
Chadwick, R ;
Berg, K .
NATURE REVIEWS GENETICS, 2001, 2 (04) :318-321
[6]  
Corrigan O., 2004, GENETIC DATABASES SO, P78
[7]  
Corrigan O, 2009, GENET SOC, P302
[8]   An exploration of the collaborative processes of making theatre inspired by science [J].
Dowell, Ellen ;
Weitkamp, Emma .
PUBLIC UNDERSTANDING OF SCIENCE, 2012, 21 (07) :891-901
[9]   Autobiologies on YouTube: narratives of direct-to-consumer genetic testing [J].
Harris, Anna ;
Kelly, Susan E. ;
Wyatt, Sally .
NEW GENETICS AND SOCIETY, 2014, 33 (01) :60-78
[10]  
Hoeyer K., 2004, GENETIC DATABASES SO, P97