Can the inflammatory bowel disease biologics registry lead to improved quality of care?

被引:0
作者
Alrubaiy, Laith [1 ]
Rikaby, Ibtihal [2 ]
Hutchings, Hayley Anne [1 ]
Williams, John Gordon [1 ]
机构
[1] Swansea Univ, Coll Med, Patient & Populat Hlth & Informat Res, Swansea, W Glam, Wales
[2] Cardiff & Vale Univ Hlth Board, Cardiff, S Glam, Wales
关键词
Crohn's disease; Inflammatory bowel disease; Ulcerative colitis;
D O I
10.1016/j.jtumed.2015.02.008
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
A registry is a systematic collection of data about a disease or a group of diseases. For some years there has been a desire amongst the gastroenterology community to develop a comprehensive registry of patients with inflammatory bowel disease (IBD). However, no coordinated national approach has been developed to achieve this objective. This article reviews the possible reasons for establishing an IBD registry and suggests a methodological approach to achieving this goal and strategies to maintain its continuity.
引用
收藏
页码:373 / 375
页数:3
相关论文
共 19 条
[1]   Clinical Epidemiology and Phenotypic Characteristics of Crohn's Disease in the Central Region of Saudi Arabia [J].
Aljebreen, Abdulrahman M. ;
Alharbi, Othman R. ;
Azzam, Nahla A. ;
Almalki, Ahmed S. ;
Alswat, Khalid A. ;
Almadi, Majid A. .
SAUDI JOURNAL OF GASTROENTEROLOGY, 2014, 20 (03) :162-169
[2]  
[Anonymous], 2003, INFLAMMATORY BOWEL D
[3]   A United Kingdom inflammatory bowel disease database: Making the effort worthwhile [J].
Bardhan, K. D. ;
Simmonds, N. ;
Royston, C. ;
Dhar, A. ;
Edwards, C. M. .
JOURNAL OF CROHNS & COLITIS, 2010, 4 (04) :405-412
[4]  
British Society of paediatric Gastroenterology Hepatology and Nutrition, 2003, REG PAEDIAT INFL BOW
[5]  
Clinical Trials, 2011, LONG TERM REG HUM AD
[6]   EULAR points to consider when establishing, analysing and reporting safety data of biologics registers in rheumatology [J].
Dixon, William G. ;
Carmona, Loreto ;
Finckh, Axel ;
Hetland, Merete Lund ;
Kvien, Tore K. ;
Landewe, Robert ;
Listing, Joachim ;
Nicola, Paulo J. ;
Tarp, Ulrik ;
Zink, Angela ;
Askling, Johan .
ANNALS OF THE RHEUMATIC DISEASES, 2010, 69 (09) :1596-1602
[7]   Three-year registry data on biological treatment for psoriasis: the influence of patient characteristics on treatment outcome [J].
Driessen, R. J. B. ;
Boezeman, J. B. ;
van de Kerkhof, P. C. M. ;
de Jong, E. M. G. J. .
BRITISH JOURNAL OF DERMATOLOGY, 2009, 160 (03) :670-675
[8]  
Ferkolj I, 2009, J PHYSIOL PHARMACOL, V60, P67
[9]   Maintenance infliximab for Crohn's disease: the ACCENT I randomised trial [J].
Hanauer, SB ;
Feagan, BG ;
Lichtenstein, GR ;
Mayer, LF ;
Schreiber, S ;
Colombel, JF ;
Rachmilewitz, D ;
Wolf, DC ;
Olson, A ;
Bao, WH ;
Rutgeerts, P .
LANCET, 2002, 359 (9317) :1541-1549
[10]   Routine database registration of biological therapy increases the reporting of adverse events twentyfold in clinical practice. First results from the Danish Database (DANBIO) [J].
Hetland, ML ;
Unkerskov, J ;
Ravn, T ;
Friis, M ;
Tarp, U ;
Andersen, LS ;
Petri, A ;
Khan, H ;
Stenver, DI ;
Hansen, A ;
Ostergaard, M .
SCANDINAVIAN JOURNAL OF RHEUMATOLOGY, 2005, 34 (01) :40-44