ATTITUDES TOWARDS PREDICTIVE TESTING IN HUNTINGTONS-DISEASE - A DEEP INTERVIEW STUDY IN SWEDEN

被引：10

作者：

MATTSSON, B

ALMQVIST, EW

机构：

[1] Department of Family Medicine, University of Umeâ

[2] Department of Geriatric Medicine, Karolinska Institute, Huddinge University Hospital, Huddinge

[3] Bengt Mattsson Clinical Reader, University of Umeâ, Mariehems Health Centre, Umeâ, S-902 37

来源：

FAMILY PRACTICE | 1991年 / 8卷 / 01期

关键词：

D O I：

10.1093/fampra/8.1.23

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Ten persons with a 50% risk of inheriting Huntington's disease were interviewed in depth about experiences of the disease with special regard to their attitude to a predictive test. The persons showed great interest, concern and worry about a test: six were generally positive while four were negative or uncertain. Every interview had a very personal character and early life experiences seemed to have a determinative influence on the attitude to the test. Persons who were without symptoms of the disease and had passed the mean age of onset within the family (usually older individuals) were largely enthusiastic about a test, as were those with slight and undetermined symptoms. Younger persons, especially those with a qualitatively good contact with the affected parent, seemed to be less interested. Contradictions during the interview were more common among those positive to testing and an ambivalence among many was reflected in a tendency towards changing opinions over time.

引用

页码：23 / 27

页数：5

共 25 条

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