The Emerging Diabetes Online Community

被引:68
作者
Hilliard, Marisa E. [1 ]
Sparling, Kerri M. [2 ]
Hitchcock, Jeff [3 ]
Oser, Tamara K. [4 ]
Hood, Korey K. [5 ]
机构
[1] Baylor Coll Med, Dept Pediat, 1102 Bates Ave,Suite 940, Houston, TX 77030 USA
[2] SixUntilMe Com, East Greenwich, RI 02818 USA
[3] Children Diabet, W Chester, OH 45069 USA
[4] Penn State Univ, Coll Med, Dept Family & Community Med, Hershey, PA 17033 USA
[5] Stanford Univ, Dept Pediat, Sch Med, Palo Alto, CA 94305 USA
关键词
Advocacy; online communication; patient communication; social support; type; 1; diabetes; 2;
D O I
10.2174/1573399811666150421123448
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Background: Diabetes self-management is complex and demanding, and isolation and burnout are common experiences. The Internet provides opportunities for people with diabetes to connect with one another to address these challenges. The aims of this paper are to introduce readers to the platforms on which Diabetes Online Community (DOC) participants interact, to discuss reasons for and risks associated with diabetes-related online activity, and to review research related to the potential impact of DOC participation on diabetes outcomes. Methods: Research and online content related to diabetes online activity is reviewed, and DOC writing excerpts are used to illustrate key themes. Guidelines for meaningful participation in DOC activities for people with diabetes, families, health care providers, and industry are provided. Results: Common themes around DOC participation include peer support, advocacy, self-expression, seeking and sharing diabetes information, improving approaches to diabetes data management, and humor. Potential risks include access to misinformation and threats to individuals' privacy, though there are limited data on negative outcomes resulting from such activities. Likewise, few data are available regarding the impact of DOC involvement on glycemic outcomes, but initial research suggests a positive impact on emotional experiences, attitudes toward diabetes, and engagement in diabetes management behaviors. Conclusion: The range of DOC participants, activities, and platforms is growing rapidly. The Internet provides opportunities to strengthen communication and support among individuals with diabetes, their families, health care providers, the health care industry, policy makers, and the general public. Research is needed to investigate the impact of DOC participation on self-management, quality of life, and glycemic control, and to design and evaluate strategies to maximize its positive impact.
引用
收藏
页码:261 / 272
页数:12
相关论文
共 94 条
[1]  
Addington H, 2014, OUR CGM CLOUD EXPERI
[2]  
[Anonymous], 2014, DIABETES INDEX
[3]  
Arduser L., 2011, J TECH WRIT COMMUN, V41, P5, DOI [10.2190/TW.41.1.b, DOI 10.2190/TW.41.1.B]
[4]   The diabetes online community: the importance of forum use in parents of children with type 1 diabetes [J].
Balkhi, Amanda M. ;
Reid, Adam M. ;
McNamara, Joseph P. H. ;
Geffken, Gary R. .
PEDIATRIC DIABETES, 2014, 15 (06) :408-415
[5]   An investigation into the empowerment effects of using online support groups and how this affects health professional/patient communication [J].
Bartlett, Yvonne Kiera ;
Coulson, Neil S. .
PATIENT EDUCATION AND COUNSELING, 2011, 83 (01) :113-119
[6]  
Benner S., 2014, COMMUNICATION
[7]  
BotScout, 2014, BOTSCOUT AB
[8]   The Role of Social Media in Online Weight Management: Systematic Review [J].
Chang, Tammy ;
Chopra, Vineet ;
Zhang, Catherine ;
Woolford, Susan J. .
JOURNAL OF MEDICAL INTERNET RESEARCH, 2013, 15 (11)
[9]   Exploring online support spaces: Using cluster analysis to examine breast cancer, diabetes and fibromyalgia support groups [J].
Chen, Annie T. .
PATIENT EDUCATION AND COUNSELING, 2012, 87 (02) :250-257
[10]  
Children With Diabetes, 2014, HUM TIDB