Everyday ethics in community-based participatory research

被引:190
作者
Banks, Sarah [1 ,2 ]
Armstrong, Andrea [3 ]
Carter, Kathleen [4 ]
Graham, Helen [5 ]
Hayward, Peter [6 ]
Henry, Alex [7 ]
Holland, Tessa [8 ]
Holmes, Claire [9 ]
Lee, Amelia [9 ]
McNulty, Ann [10 ]
Moore, Niamh [11 ]
Nayling, Nigel [12 ]
Stokoe, Ann [13 ]
Strachan, Aileen [14 ]
机构
[1] Univ Durham, Ctr Social Justice & Community Act, Elvet Riverside 2, Durham DH7 3JT, England
[2] Univ Durham, Sch Appl Social Sci, Durham DH7 3JT, England
[3] Univ Durham, Durham, England
[4] Thrive, Thornaby, England
[5] Univ Leeds, Leeds, W Yorkshire, England
[6] Friends Newport Ship, Newport, Gwent, Wales
[7] Tyne & Wear Arch & Museums, South Shields, England
[8] West End Housing Coop, Energy Grp, Newcastle Upon Tyne, Tyne & Wear, England
[9] Likt, Manchester, Lancs, England
[10] Hlth & Race Equal Forum, Newcastle, England
[11] Univ Manchester, Manchester, Lancs, England
[12] Univ Wales Trinity St David, Swansea, W Glam, Wales
[13] Over Waves, Aberteifi, Wales
[14] Glasgow Museums, Glasgow Life, Glasgow, Lanark, Scotland
关键词
community-based participatory research; ethics; institutional review; ethical guidelines;
D O I
10.1080/21582041.2013.769618
中图分类号
C [社会科学总论];
学科分类号
03 ; 0303 ;
摘要
This article explores a range of ethical issues that arise in community-based participatory research (CBPR), drawing on literature and examples from practice. The experience of CBPR practitioners adds further weight to the growing critique by many other social researchers of regulatory approaches to research ethics (which focus on rule following in accordance with research governance frameworks, codes of conduct and ethics review procedures). Yet, whilst many of the ethical challenges in CBPR are common to social research generally (informed consent, anonymity, issues of ownership of data and findings), the dynamic, complex and value-based nature of CBPR gives them particular prominence. There are also specific issues relating to the ethics of partnership working, collaboration, blurring of boundaries between researchers and researched, community rights, community conflict and democratic participation that are more frequently encountered in CBPR. Four practice examples are used to demonstrate this argument. These are taken from a young women's community allotment, a community organisation researching poverty, a youth peer research project and a museum-based digital storytelling project. The article concludes that current institutional ethical codes, guidelines and ethical review procedures are not particularly well-suited to CBPR, in that they adopt principle-based and regulatory approaches to ethics; whereas character-and relationship-based approaches to ethics are also very important in CBPR, which is adopted by many researchers with a strong value commitment to social justice.
引用
收藏
页码:263 / 277
页数:15
相关论文
共 38 条
[1]  
[Anonymous], NICHOMACHEAN ETHICS
[2]  
Banks S., 2012, UNDERSTANDING RES SO, P56
[3]  
Banks S., 2009, ETHICS PROFESSIONAL
[4]  
Banks S, 2012, PRACTISING SOCIAL WORK ETHICS AROUND THE WORLD: CASES AND COMMENTARIES, P1
[5]  
Baron Marcia W., 1997, 3 METHODS ETHICS, P3
[6]  
Benneworth P., 2009, CHARACTERIZING MODES
[7]  
Cancian FM., 1993, AM SOCIOL, V24(1), P92, DOI [10.1007/BF02691947, DOI 10.1007/BF02691947]
[8]   Can the democratic ideal of participatory research be achieved?: An inside look at an academic-indigenous community partnership [J].
Cargo, Margaret ;
Delormier, Treena ;
Levesque, Lucie ;
Horn-Miller, Kahente ;
McComber, Alex ;
Macaulay, Ann C. .
HEALTH EDUCATION RESEARCH, 2008, 23 (05) :904-914
[9]  
Centre for Social Justice and Community Action (CSJCA) Durham University and National Coordinating Centre for Public Engagement (NCCPE), 2012, COMM BAS PART RES GU
[10]   'We are not just participants - We are in charge': The NACCHO ear trial and the process for Aboriginal community-controlled health research [J].
Couzos, S ;
Lea, T ;
Murray, R ;
Culbong, M .
ETHNICITY & HEALTH, 2005, 10 (02) :91-111