A Shared e-Decision Support Portal for Pediatric Asthma

被引：35

作者：

Fiks, Alexander G. ^{[1
,2
,3
,4
,5
,6
]}

Mayne, Stephanie ^{[3
,4
]}

Karavite, Dean J. ^{[2
]}

DeBartolo, Elena ^{[3
,4
]}

Grundmeier, Robert W. ^{[1
,2
,5
,6
]}

机构：

[1] Pediat Res Consortium PeRC, Philadelphia, PA USA

[2] Ctr Biomed Informat, Philadelphia, PA USA

[3] PolicyLab, Philadelphia, PA USA

[4] Ctr Pediat Clin Effectiveness, Philadelphia, PA USA

[5] Childrens Hosp Philadelphia, 3535 Market Ste,Room 1546, Philadelphia, PA 19104 USA

[6] Univ Penn, Perelman Sch Med, Dept Pediat, Philadelphia, PA 19104 USA

来源：

JOURNAL OF AMBULATORY CARE MANAGEMENT | 2014年 / 37卷 / 02期

关键词：

asthma; patient portals; shared decision making;

D O I：

10.1097/JAC.0000000000000025

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

We describe the user-centered development of an electronic medical record-based portal, "MyAsthma," designed to facilitate shared decision making in pediatric asthma. Interviews and focus groups with 7 parents of children with asthma and 51 clinical team members elicited 2 overarching requirements: that the portal should support sustained communication and ensure patient safety. Parents and clinicians prioritized features including collecting parent and child concerns and goals; symptom, side effect, and medication adherence tracking with decision support; and accessible educational materials. Iterative usability testing refined the system. MyAsthma provides a model for using technology to foster shared decision making in ambulatory care settings.

引用

页码：120 / 126

页数：7

共 13 条

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