A Shared e-Decision Support Portal for Pediatric Asthma

被引：36

作者：

Fiks, Alexander G. ^{[1
,2
,3
,4
,5
,6
]}

Mayne, Stephanie ^{[3
,4
]}

Karavite, Dean J. ^{[2
]}

DeBartolo, Elena ^{[3
,4
]}

Grundmeier, Robert W. ^{[1
,2
,5
,6
]}

机构：

[1] Pediat Res Consortium PeRC, Philadelphia, PA USA

[2] Ctr Biomed Informat, Philadelphia, PA USA

[3] PolicyLab, Philadelphia, PA USA

[4] Ctr Pediat Clin Effectiveness, Philadelphia, PA USA

[5] Childrens Hosp Philadelphia, 3535 Market Ste,Room 1546, Philadelphia, PA 19104 USA

[6] Univ Penn, Perelman Sch Med, Dept Pediat, Philadelphia, PA 19104 USA

来源：

JOURNAL OF AMBULATORY CARE MANAGEMENT | 2014年 / 37卷 / 02期

关键词：

asthma; patient portals; shared decision making;

D O I：

10.1097/JAC.0000000000000025

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

We describe the user-centered development of an electronic medical record-based portal, "MyAsthma," designed to facilitate shared decision making in pediatric asthma. Interviews and focus groups with 7 parents of children with asthma and 51 clinical team members elicited 2 overarching requirements: that the portal should support sustained communication and ensure patient safety. Parents and clinicians prioritized features including collecting parent and child concerns and goals; symptom, side effect, and medication adherence tracking with decision support; and accessible educational materials. Iterative usability testing refined the system. MyAsthma provides a model for using technology to foster shared decision making in ambulatory care settings.

引用

页码：120 / 126

页数：7

共 13 条

[1]

Bloom Barbara, 2011, Vital Health Stat 10, P1

[2] Usability Testing Finds Problems for Novice Users of Pediatric Portals [J].

Britto, Maria T. ;

Jimison, Holly B. ;

Munafo, Jennifer Knopf ;

Wissman, Jennifer ;

Rogers, Michelle L. ;

Hersh, William .

JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION, 2009, 16 (05) :660-669

[3]

Centers for Medicare & Medicaid Services (CMS) HHS, 2010, Fed Regist, V75, P44313

[4] Shared decision-making in the medical encounter: What does it mean? (Or it takes at least two to tango) [J].

Charles, C ;

Gafni, A ;

Whelan, T .

SOCIAL SCIENCE & MEDICINE, 1997, 44 (05) :681-692

[5] Comparative Effectiveness Research Using the Electronic Medical Record: An Emerging Area of Investigation in Pediatric Primary Care [J].

Fiks, Alexander G. ;

Grundmeier, Robert W. ;

Margolis, Benyamin ;

Bell, Louis M. ;

Steffes, Jennifer ;

Massey, James ;

Wasserman, Richard C. .

JOURNAL OF PEDIATRICS, 2012, 160 (05) :719-724

[6] Shared Decision-Making and Health Care Expenditures Among Children With Special Health Care Needs [J].

Fiks, Alexander G. ;

Mayne, Stephanie ;

Localio, A. Russell ;

Alessandrini, Evaline A. ;

Guevara, James P. .

PEDIATRICS, 2012, 129 (01) :99-107

[7] Designing Computerized Decision Support That Works for Clinicians and Families [J].

Fiks, Alexander G. .

CURRENT PROBLEMS IN PEDIATRIC AND ADOLESCENT HEALTH CARE, 2011, 41 (03) :60-88

[8] Shared Decision-Making in Pediatrics: A National Perspective [J].

Fiks, Alexander G. ;

Localio, A. Russell ;

Alessandrini, Evaline A. ;

Asch, David A. ;

Guevara, James P. .

PEDIATRICS, 2010, 126 (02) :306-314

[9] A Demonstration Of Shared Decision Making In Primary Care Highlights Barriers To Adoption And Potential Remedies [J].

Friedberg, Mark W. ;

Van Busum, Kristin ;

Wexler, Richard ;

Bowen, Megan ;

Schneider, Eric C. .

HEALTH AFFAIRS, 2013, 32 (02) :268-275

[10]

Institute of Medicine, 1999, ERR IS HUMAN BUILDIN

← 1 2 →