Exploring the spiritual needs of families with seriously ill children

被引:9
作者
Ferrell, Betty [1 ]
Wittenberg, Elaine [1 ]
Battista, Vanessa [2 ]
Walker, Gay [3 ]
机构
[1] City Hope Natl Med Ctr, Div Nursing Res & Educ, 1500 E Duarte Rd, Duarte, CA 91010 USA
[2] Childrens Hosp Philadelphia, Philadelphia, PA USA
[3] Providence Trinity Care Hosp, Hosp & Paediat Palliat Care, Torrance, CA USA
关键词
Nursing; Spirituality; Paediatrics; Palliative care; Qualitative;
D O I
10.12968/ijpn.2016.22.8.388
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Although we know that families of seriously ill children experience spiritual distress, especially at the end of the child's life, there is little information on the specific spiritual needs of families. In order to develop further training for nurses in paediatrics and help nurses develop skills for communicating about spirituality, this research examined the spiritual needs of families based on nurses' experiences with families of seriously ill children. Nurses' experiences revealed that families' anger with God, blame/regret, forgiveness, and ritual and cultural traditions are salient spiritual needs requiring effective nurse communication skills to support families of ill children.
引用
收藏
页码:388 / 394
页数:7
相关论文
共 20 条
[1]  
Baird P, 2016, HOSPICE PALLAITIVE N
[2]   Family perspectives on the quality of pediatric palliative care [J].
Contro, N ;
Larson, J ;
Scofield, S ;
Sourkes, B ;
Cohen, H .
ARCHIVES OF PEDIATRICS & ADOLESCENT MEDICINE, 2002, 156 (01) :14-19
[3]   Barriers to palliative care for children: Perceptions of pediatric health care providers [J].
Davies, Betty ;
Sehring, Sally A. ;
Partridge, J. Colin ;
Cooper, Bruce A. ;
Hughes, Anne ;
Philp, Julie C. ;
Amidi-Nouri, Aara ;
Kramer, Robin F. .
PEDIATRICS, 2008, 121 (02) :282-288
[4]   Culturally-Sensitive Information-Sharing in Pediatric Palliative Care [J].
Davies, Betty ;
Contro, Nancy ;
Larson, Judith ;
Widger, Kimberley .
PEDIATRICS, 2010, 125 (04) :E859-E865
[5]   Nurses' Responses to Requests for Forgiveness at the End of Life [J].
Ferrell, Betty ;
Otis-Green, Shirley ;
Baird, Reverend Pamela ;
Garcia, Andrea .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2014, 47 (03) :631-641
[6]   Paediatric death and dying: exploring coping strategies of health professionals and perceptions of support provision [J].
Forster, Elizabeth ;
Hafiz, Alaa .
INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2015, 21 (06) :294-301
[7]   Impact of a Pediatric Palliative Care Program on the Caregiver Experience [J].
Gans, Daphna ;
Hadler, Max W. ;
Chen, Xiao ;
Wu, Shang-Hua ;
Dimand, Robert ;
Abramson, Jill M. ;
Diamant, Allison L. ;
Kominski, Gerald F. .
JOURNAL OF HOSPICE & PALLIATIVE NURSING, 2015, 17 (06) :559-565
[8]   Understanding communication among health care professionals regarding death and dying in pediatrics [J].
Harrison, Julianne ;
Evan, Elana ;
Hughes, Amy ;
Yazdani, Shahram ;
Federman, Myke ;
Harrison, Rick .
PALLIATIVE & SUPPORTIVE CARE, 2014, 12 (05) :387-392
[9]   How Parents of Children Receiving Pediatric Palliative Care Use Religion, Spirituality, or Life Philosophy in Tough Times [J].
Hexem, Kari R. ;
Mollen, Cynthia J. ;
Carroll, Karen ;
Lanctot, Dexter A. ;
Feudtner, Chris .
JOURNAL OF PALLIATIVE MEDICINE, 2011, 14 (01) :39-44
[10]  
Lichenthal W G, 2016, PERINATAL PAEDIAT BE