Narrative medicine educational project to improve the care of patients with chronic obstructive pulmonary disease

被引:18
作者
Cappuccio, Antonietta [1 ]
Zamparelli, Alessandro Sanduzzi [2 ]
Verga, Massimo [3 ]
Nardini, Stefano [4 ]
Policreti, Alessandro [5 ]
Porpiglia, Pasquale Alberto [5 ]
Napolitano, Silvia [1 ]
Marini, Maria Giulia [1 ]
机构
[1] Fdn ISTUD, Piazza 4 Novembre 7, I-20124 Milan, Italy
[2] Univ Federico II, Sect Resp Dis, Dept Clin Med & Surg, Naples, Italy
[3] ASST Santi Paolo & Carlo, Antismoking Ctr, Milan, Italy
[4] Gen Hosp, Pulm & TB Unit, Vittorio Veneto, Italy
[5] Novartis Farma, Med Dept, Origgio, Italy
关键词
D O I
10.1183/23120541.00155-2017
中图分类号
R56 [呼吸系及胸部疾病];
学科分类号
摘要
Chronic obstructive pulmonary disease (COPD) is characterised by a progressive loss of pulmonary function. Often patients do not adhere to inhaled therapies and this leads clinicians to switch treatments in order to improve control of the symptoms. Narrative medicine is a useful approach that helps healthcare professionals to think over the doctor-patient relationship and how patients live with their disease. The aim of this training project was to teach pulmonologists the basics of narrative medicine: to carefully listen to patients and to practice reflective writing in their relationship with them. Training on narrative medicine and parallel charts was provided through a webinar and a weekly newsletter. Across 362 narratives, written by 74 Italian pulmonologists, 92% of patients had activity limitations at their first visit. The main factor influencing the effectiveness and adherence to therapy was a positive doctor-patient relationship; indeed, if such relationship is difficult, only 21% of patients are able to resume all their activities. After learning the narrative approach, clinicians became aware of the need to spend more time listening to patients, to reflect through writing and to understand more deeply the motivations that lead people towards adherence to new therapies.
引用
收藏
页数:12
相关论文
共 39 条
  • [1] Factors Associated with Medication Adherence in Patients with Chronic Obstructive Pulmonary Disease
    Agh, Tamas
    Inotai, Andras
    Meszaros, Agnes
    [J]. RESPIRATION, 2011, 82 (04) : 328 - 334
  • [2] Narrative medicine to improve the management and quality of life of patients with COPD: the first experience applying parallel chart in Italy
    Banfi, Paolo
    Cappuccio, Antonietta
    Latella, Maura E.
    Reale, Luigi
    Muscianisi, Elisa
    Marini, Maria Giulia
    [J]. INTERNATIONAL JOURNAL OF CHRONIC OBSTRUCTIVE PULMONARY DISEASE, 2018, 13 : 287 - 297
  • [3] Interactive Monitoring Service and COPD: Is it Possible to Reduce Nonadherence?
    Blasi, Francesco
    Raddi, Federica
    Miravitlles, Marc
    [J]. COPD-JOURNAL OF CHRONIC OBSTRUCTIVE PULMONARY DISEASE, 2015, 12 (03) : 227 - 232
  • [4] Patient adherence in COPD
    Bourbeau, J.
    Bartlett, S. J.
    [J]. THORAX, 2008, 63 (09) : 831 - 838
  • [5] Illness narratives: fact or fiction?
    Bury, M
    [J]. SOCIOLOGY OF HEALTH & ILLNESS, 2001, 23 (03) : 263 - 285
  • [6] Invisible suffering: breathlessness in and beyond the clinic
    Carel, Havi
    Macnaughton, Jane
    Dodd, James
    [J]. LANCET RESPIRATORY MEDICINE, 2015, 3 (04) : 278 - 279
  • [7] Close Reading and Creative Writing in Clinical Education: Teaching Attention, Representation, and Affiliation
    Charon, Rita
    Hermann, Nellie
    Devlin, Michael J.
    [J]. ACADEMIC MEDICINE, 2016, 91 (03) : 345 - 350
  • [8] Narrative medicine in the international education of physicians
    Charon, Rita
    [J]. PRESSE MEDICALE, 2013, 42 (01): : 3 - 5
  • [9] Reflective writing and its impact on empathy in medical education: systematic review
    Chen, Isabel
    Forbes, Connor
    [J]. JOURNAL OF EDUCATIONAL EVALUATION FOR HEALTH PROFESSIONS, 2014, 11
  • [10] The burden of COPD in Italy: results from the Confronting COPD survey
    Dal Negro, R
    Rossi, A
    Cerveri, I
    [J]. RESPIRATORY MEDICINE, 2003, 97 : S43 - S50