The meaning of dying with dignity from caregivers perspective: a phenomenological study

被引:2
|
作者
Ibanez-Masero, Olivia [1 ]
Ortega-Galan, Angela M. [2 ,7 ]
Ines Carmona-Rega, M. [3 ]
Dolores Ruiz-Fernandez, M. [4 ]
Cabrera-Troya, Jose [5 ]
Garcia-Cisneros, Rogelio [6 ]
Relinque Medina, Fernando [8 ]
机构
[1] Complejo Hosp Univ Huelva, UGC Cuidados Crit, Hosp Juan Ramon Jimenez, Huelva, Spain
[2] Hosp Vazquez Diaz, Serv Quirofano, Huelva, Spain
[3] Dist Metropolitano Granada, ZBS Santa Fe, Granada, Spain
[4] Dist Sanitario Almeria, UGC Cruz de Caravaca, Almeria, Spain
[5] Ctr Don Julio Borreguero El Coronil, UGC Virgen de la Consolacion, Seville, Spain
[6] Area Sanitaria Norte Malaga, Malaga, Spain
[7] Univ Huelva, Dept Sociol & Trabajo Social, Huelva, Spain
[8] Complejo Hosp Univ Huelva, Huelva, Spain
来源
ENFERMERIA CLINICA | 2016年 / 26卷 / 06期
关键词
Right to die; Nursing; Bioethics; Qualitative research; Caregivers;
D O I
10.1016/j.enfcli.2016.07.003
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Objective: To explore the meaning of dying with dignity from the perspective of the direct witnesses who have accompanied this process in dying people from Andalusia. Method: Phenomenological study conducted in different centres, which including analysing the transcriptions of the dialogues from discussion groups with 40 participants in five provinces in Southern Spain. The data was analysed using the Van Manen proposal and Atlas Ti 7.0 program was applied as a software tool. Results: Being in the company of loved ones is noted as a key element in the perception of a dignified death. The following elements, according to a priority order, were also pointed out: relief of suffering, a good professional care, decision making ability, and the opportunity to consider their spiritual dimension. Achievement of their Living Wills is hardly mentioned. Conclusion: The essential elements defined in the Death with Dignity Law, 2/2010 are confirmed as being true (without suffering, with company, respecting living wills, having possibilities of the farewell, and the transcendental meaning of the death process). Caregivers, at the end of life, give priority to psychological aspects, underlying the need of company, a farewell of the loved ones, and a good professional care on the physical aspects. The promotion of the dignified Death Law and Living Wills are still being developed. (C) 2016 Elsevier Espana, S.L.U. All rights reserved.
引用
收藏
页码:358 / 366
页数:9
相关论文
共 50 条
  • [1] "Dying With Dignity": A Qualitative Study With Caregivers on the Care of Individuals With Terminal Cancer
    Hayden, Lucy
    Dunne, Simon
    OMEGA-JOURNAL OF DEATH AND DYING, 2022, 84 (04) : 1122 - 1145
  • [2] Exploring the meaning of dignity at end of life for Chinese Canadians caregivers: A qualitative cross-cultural study
    Lou, Cindy
    Lou, Kelvin
    Ridley, Julia
    PALLIATIVE MEDICINE, 2021, 35 (01) : 142 - 150
  • [3] The meaning of hospitalization from the perspective of the caregiver: A qualitative study
    Jazmin Marrujo-Perez, Karina
    Veronica Berumen-Burciaga, Luz
    Mejia-Mejia, Yadira
    Palacios-Cena, Domingo
    ENFERMERIA CLINICA, 2016, 26 (02): : 102 - 110
  • [4] Caregivers' perception of women's dignity in the delivery room: A qualitative study
    Mohammadi, Fateme
    Tabatabaei, Hadise Sadate
    Mozafari, Farzaneh
    Gillespie, Mark
    NURSING ETHICS, 2020, 27 (01) : 116 - 126
  • [5] The perspective of caregivers from a gender analysis
    Sanjuan-Quiles, Angela
    Alcaniz-Garran, Maria del Mar
    Montejano-Lozoya, Raimunda
    Ramos-Pichardo, Juan Diego
    Garcia-Sanjuan, Sofia
    REVISTA ESPANOLA DE SALUD PUBLICA, 2023, 97
  • [6] The dignity of burn patients: a qualitative descriptive study of nurses, family caregivers, and patients
    Tehranineshat, Banafsheh
    Rakhshan, Mahnaz
    Torabizadeh, Camellia
    Fararouei, Mohammad
    Gillespie, Mark
    BMC NURSING, 2021, 20 (01)
  • [7] Dignity of informal caregivers of migrant patients in the last phase of life: a qualitative study
    de Voogd, X.
    Willems, D. L.
    Torensma, M.
    Onwuteaka-Philipsen, B. D.
    Suurmond, J. L.
    BMC PALLIATIVE CARE, 2021, 20 (01)
  • [8] Caregivers' Experiences With Medical Aid-In-Dying in Vermont: A Qualitative Study
    Buchbinder, Mara
    Ojo, Enioluwafe
    Knio, Laila
    Brassfield, Elizabeth R.
    JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2018, 56 (06) : 936 - 943
  • [9] The dignity of burn patients: a qualitative descriptive study of nurses, family caregivers, and patients
    Banafsheh Tehranineshat
    Mahnaz Rakhshan
    Camellia Torabizadeh
    Mohammad Fararouei
    Mark Gillespie
    BMC Nursing, 20
  • [10] Dignity of informal caregivers of migrant patients in the last phase of life: a qualitative study
    X. de Voogd
    D. L. Willems
    M. Torensma
    B. D. Onwuteaka-Philipsen
    J. L. Suurmond
    BMC Palliative Care, 20