Methodological issues in measuring health-related quality of life

被引：119

作者：

Lin, Xiao-Jun ^{[1
]}

Lin, I-Mei ^{[2
]}

Fan, Sheng-Yu ^{[3
]}

机构：

[1] Buddhist Tzu Chi Gen Hosp, Heart Lotus Ward, Hualien, Taiwan

[2] Kaohsiung Med Univ, Dept Psychol, Kaohsiung, Taiwan

[3] Tzu Chi Univ, Dept Human Dev, 701,Sect 3,Chung Yang Rd, Hualien, Taiwan

来源：

TZU CHI MEDICAL JOURNAL | 2013年 / 25卷 / 01期

关键词：

Health-related quality of life; Measurement; Methodological issues; Quality of life;

D O I：

10.1016/j.tcmj.2012.09.002

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

Modern medicine has made significant progress in screening, diagnosis, and treatment, but the objectives of treatment have been a subject of debate. The question "Should the focus be on the quantity or on the quality of survival?" still prevails Nowadays, health-related quality of life (HRQOL) has become an important index in medical treatment and clinical care. The health care system focuses on improvement in quality of life and health which are influenced by illness. The emphases of this article are on the definition and concepts of HRQOL. We discuss the methodological issues in the measurement of HRQOL including: (1) objectivity versus subjectivity, (2) generic versus specific, (3) unidimensional versus multidimensional, (4) self-report versus proxy report, (5) reliability, (6) validity, and (7) the selection of HRQOL measures. Subsequently, the importance of HRQOL in the treatment of a disease is also addressed. Copyright (C) 2012, Buddhist Compassion Relief Tzu Chi Foundation. Published by Elsevier Taiwan LLC. All rights reserved.

引用

页码：8 / 12

页数：5

共 61 条

[1]

Aaronson N K, 1988, Oncology (Williston Park), V2, P69

[2] THE EUROPEAN-ORGANIZATION-FOR-RESEARCH-AND-TREATMENT-OF-CANCER QLQ-C30 - A QUALITY-OF-LIFE INSTRUMENT FOR USE IN INTERNATIONAL CLINICAL-TRIALS IN ONCOLOGY [J].

AARONSON, NK ;

AHMEDZAI, S ;

BERGMAN, B ;

BULLINGER, M ;

CULL, A ;

DUEZ, NJ ;

FILIBERTI, A ;

FLECHTNER, H ;

FLEISHMAN, SB ;

DEHAES, JCJM ;

KAASA, S ;

KLEE, M ;

OSOBA, D ;

RAZAVI, D ;

ROFE, PB ;

SCHRAUB, S ;

SNEEUW, K ;

SULLIVAN, M ;

TAKEDA, F .

JOURNAL OF THE NATIONAL CANCER INSTITUTE, 1993, 85 (05) :365-376

[3] CRITICAL-REVIEW OF THE INTERNATIONAL ASSESSMENTS OF HEALTH-RELATED QUALITY-OF-LIFE [J].

ANDERSON, RT ;

AARONSON, NK ;

WILKIN, D .

QUALITY OF LIFE RESEARCH, 1993, 2 (06) :369-395

[4] WHAT THINGS ARE IMPORTANT IN PEOPLES LIVES - A SURVEY OF THE PUBLICS JUDGMENTS TO INFORM SCALES OF HEALTH-RELATED QUALITY-OF-LIFE [J].

BOWLING, A .

SOCIAL SCIENCE & MEDICINE, 1995, 41 (10) :1447-1462

[5]

Bowling A., 2001, MEASURING DIS REV DI, P1

[6]

Campbell A., 1976, QUALITY AM LIFE PERC

[7]

Cella David, 2007, J Natl Cancer Inst Monogr, P53

[8] THE FUNCTIONAL ASSESSMENT OF CANCER-THERAPY SCALE - DEVELOPMENT AND VALIDATION OF THE GENERAL MEASURE [J].

CELLA, DF ;

TULSKY, DS ;

GRAY, G ;

SARAFIAN, B ;

LINN, E ;

BONOMI, A ;

SILBERMAN, M ;

YELLEN, SB ;

WINICOUR, P ;

BRANNON, J ;

ECKBERG, K ;

LLOYD, S ;

PURL, S ;

BLENDOWSKI, C ;

GOODMAN, M ;

BARNICLE, M ;

STEWART, I ;

MCHALE, M ;

BONOMI, P ;

KAPLAN, E ;

TAYLOR, S ;

THOMAS, CR ;

HARRIS, J .

JOURNAL OF CLINICAL ONCOLOGY, 1993, 11 (03) :570-579

[9] Health care policy - Outcomes research: Measuring the end results of health care [J].

Clancy, CM ;

Eisenberg, JM .

SCIENCE, 1998, 282 (5387) :245-246

[10] WEIGHTED KAPPA - NOMINAL SCALE AGREEMENT WITH PROVISION FOR SCALED DISAGREEMENT OR PARTIAL CREDIT [J].

COHEN, J .

PSYCHOLOGICAL BULLETIN, 1968, 70 (04) :213-&

← 1 2 3 4 5 6 7 →