Cascading crises, resilience and social support within the onset and development of multiple chronic conditions

被引:54
作者
Sells, Dave [1 ]
Sledge, William H. [1 ]
Wieland, Melissa [2 ]
Walden, David [3 ]
Flanagan, Elizabeth [1 ]
Miller, Rebecca [1 ]
Davidson, Larry [1 ]
机构
[1] Yale Med Sch, Yale Program Recovery & Community Hlth, New Haven, CT 06510 USA
[2] Western Psychiat Inst & Clin, Adv Ctr Intervent & Serv, Pittsburgh, PA USA
[3] Fielding Grad Univ, Dept Psychiat, Santa Barbara, CA USA
关键词
Illness development; Multiple chronic illnesses; Resilience; Social support;
D O I
10.1177/1742395309104166
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Objective: To describe and better understand adults' responses to the onset, accrual and influence of multiple chronic conditions and to social support in adapting to consequent difficulties. Methods: Qualitative study of 33 adults with multiple chronic illnesses randomly sampled from an urban primary care clinic. Semi-structured interviews targeted retrospective accounts of illness onset, consequent loss, as well as current accounts of social support and adaptation. All interviews were audio-recorded, professionally transcribed and analysed according to established phenomenological procedures. Results: Participants' responses revealed illness onset as a virtual cascade of medical, emotional and social hardships, leading to loss and subsequent adaptation through personal resilience and particularly, available social support. Participants also described patterns of adaptation punctuated by the felt need and rewards of providing care to others. Discussion: The experience of multiple chronic illnesses has a distinct pattern of development and consequence, involving challenges to personal identity and the benefits of social support from and to others. Our results suggest that programmes addressing the needs of persons with multiple chronic conditions might tailor interventions in ways that maximally address their unique challenges.
引用
收藏
页码:92 / 102
页数:11
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