'Just a Bit of Fun': How Recreational is Direct-to-Customer Genetic Testing?

被引:9
作者
Felzmann, Heike [1 ]
机构
[1] Natl Univ Ireland, Philosophy, Galway, Ireland
来源
NEW BIOETHICS-A MULTIDISCIPLINARY JOURNAL OF BIOTECHNOLOGY AND THE BODY | 2015年 / 21卷 / 01期
关键词
DTC genetic testing; recreational genomics; genetic identity; genetic literacy;
D O I
10.1179/2050287715Z.00000000062
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
Direct to consumer (DTC) genetic testing has given rise to much controversy, especially in relation to testing for health diagnostic purposes. This paper will consider whether consumers' use of DTC genetic testing should be understood as predominantly recreational. It will be argued that recreational testing can encompass all information domains, including most kinds of predictive health risk information. In relation to recreational testing the potential identity implications for the consumer become a significant concern, more so than the risks more traditionally associated with genetic testing. It will be concluded that while the DTC genetic testing sector is beset by numerous problems and an increase in consumers' genetic literacy is highly desirable, consumers' engagement with DTC genetic testing may be less problematic than sometimes assumed.
引用
收藏
页码:20 / 32
页数:13
相关论文
共 25 条
[1]   Effect of Direct-to-Consumer Genomewide Profiling to Assess Disease Risk. [J].
Bloss, Cinnamon S. ;
Schork, Nicholas J. ;
Topol, Eric J. .
NEW ENGLAND JOURNAL OF MEDICINE, 2011, 364 (06) :524-534
[2]   Nonpropositional Content in Direct-to-Consumer Genetic Testing Advertisements [J].
Borry, Pascal ;
Shabani, Mahsa ;
Howard, Heidi Carmen .
AMERICAN JOURNAL OF BIOETHICS, 2013, 13 (05) :14-16
[3]   Where are you going, where have you been: A recent history of the direct-to-consumer genetic testing market [J].
Borry P. ;
Cornel M.C. ;
Howard H.C. .
Journal of Community Genetics, 2010, 1 (3) :101-106
[4]   LEISURE VALUE-SYSTEMS AND RECREATIONAL SPECIALIZATION - CASE OF TROUT FISHERMEN [J].
BRYAN, H .
JOURNAL OF LEISURE RESEARCH, 1977, 9 (03) :174-187
[5]   Direct-to-consumer testing: if consumers are not anxious, why are policymakers? [J].
Caulfield, Timothy .
HUMAN GENETICS, 2011, 130 (01) :23-25
[6]   The challenge of implementing genetic tests with clinical utility while avoiding unsound applications [J].
Cornel M.C. ;
Van El C.G. ;
Borry P. .
Journal of Community Genetics, 2014, 5 (1) :7-12
[7]   "We Don't Know Her History, Her Background": Adoptive Parents' Perspectives on Whole Genome Sequencing Results [J].
Crouch, Julia ;
Yu, Joon-Ho ;
Shankar, Aditi G. ;
Tabor, Holly K. .
JOURNAL OF GENETIC COUNSELING, 2015, 24 (01) :67-77
[8]  
Drabiak-Syed Katherine, 2010, J HLTH BIOMEDICAL L, V6, P175
[9]   Identity and genetic ancestry tracing [J].
Elliott, C ;
Brodwin, P .
BRITISH MEDICAL JOURNAL, 2002, 325 (7378) :1469-1471
[10]   Recreational genomics; what's in it for you? [J].
Evans, James P. .
GENETICS IN MEDICINE, 2008, 10 (10) :709-710