Direct to consumer (DTC) genetic testing has given rise to much controversy, especially in relation to testing for health diagnostic purposes. This paper will consider whether consumers' use of DTC genetic testing should be understood as predominantly recreational. It will be argued that recreational testing can encompass all information domains, including most kinds of predictive health risk information. In relation to recreational testing the potential identity implications for the consumer become a significant concern, more so than the risks more traditionally associated with genetic testing. It will be concluded that while the DTC genetic testing sector is beset by numerous problems and an increase in consumers' genetic literacy is highly desirable, consumers' engagement with DTC genetic testing may be less problematic than sometimes assumed.
机构:
Scripps Translat Sci Inst, La Jolla, CA 92037 USA
Scripps Hlth, La Jolla, CA USAScripps Translat Sci Inst, La Jolla, CA 92037 USA
Bloss, Cinnamon S.
;
Schork, Nicholas J.
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机构:
Scripps Translat Sci Inst, La Jolla, CA 92037 USA
Scripps Hlth, La Jolla, CA USA
Scripps Res Inst, Dept Mol & Expt Med, La Jolla, CA 92037 USAScripps Translat Sci Inst, La Jolla, CA 92037 USA
Schork, Nicholas J.
;
Topol, Eric J.
论文数: 0引用数: 0
h-index: 0
机构:
Scripps Translat Sci Inst, La Jolla, CA 92037 USA
Scripps Hlth, La Jolla, CA USA
Scripps Res Inst, Dept Mol & Expt Med, La Jolla, CA 92037 USA
Scripps Clin, La Jolla, CA 92037 USAScripps Translat Sci Inst, La Jolla, CA 92037 USA
机构:
Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, 3000 Leuven
Department of Medical Humanities, VU University Medical Center, Department of Clinical Genetics, 1007 MB AmsterdamCentre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, 3000 Leuven
Borry P.
;
Cornel M.C.
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h-index: 0
机构:
Department of Medical Humanities, VU University Medical Center, Department of Clinical Genetics, 1007 MB AmsterdamCentre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, 3000 Leuven
Cornel M.C.
;
Howard H.C.
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h-index: 0
机构:
Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, 3000 LeuvenCentre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, 3000 Leuven
机构:
Section Community Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam
Centre for Medical Systems Biology, Leiden
Centre for Society and the Life Sciences, Nijmegen
Department of Clinical Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, 1007 MB AmsterdamSection Community Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam
Cornel M.C.
;
Van El C.G.
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h-index: 0
机构:
Section Community Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam
Centre for Medical Systems Biology, Leiden
Centre for Society and the Life Sciences, NijmegenSection Community Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam
Van El C.G.
;
Borry P.
论文数: 0引用数: 0
h-index: 0
机构:
Section Community Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam
Centre for Biomedical Ethics and Law, K.U. Leuven, LeuvenSection Community Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam
机构:
Seattle Childrens Res Inst, Treuman Katz Ctr Pediat Bioeth, Seattle, WA 98101 USASeattle Childrens Res Inst, Treuman Katz Ctr Pediat Bioeth, Seattle, WA 98101 USA
Crouch, Julia
;
Yu, Joon-Ho
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h-index: 0
机构:
Univ Washington, Dept Pediat, Seattle, WA 98195 USASeattle Childrens Res Inst, Treuman Katz Ctr Pediat Bioeth, Seattle, WA 98101 USA
Yu, Joon-Ho
;
Shankar, Aditi G.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Washington, Dept Pediat, Seattle, WA 98195 USASeattle Childrens Res Inst, Treuman Katz Ctr Pediat Bioeth, Seattle, WA 98101 USA
Shankar, Aditi G.
;
Tabor, Holly K.
论文数: 0引用数: 0
h-index: 0
机构:
Seattle Childrens Res Inst, Treuman Katz Ctr Pediat Bioeth, Seattle, WA 98101 USA
Univ Washington, Dept Pediat, Seattle, WA 98195 USASeattle Childrens Res Inst, Treuman Katz Ctr Pediat Bioeth, Seattle, WA 98101 USA
机构:
Scripps Translat Sci Inst, La Jolla, CA 92037 USA
Scripps Hlth, La Jolla, CA USAScripps Translat Sci Inst, La Jolla, CA 92037 USA
Bloss, Cinnamon S.
;
Schork, Nicholas J.
论文数: 0引用数: 0
h-index: 0
机构:
Scripps Translat Sci Inst, La Jolla, CA 92037 USA
Scripps Hlth, La Jolla, CA USA
Scripps Res Inst, Dept Mol & Expt Med, La Jolla, CA 92037 USAScripps Translat Sci Inst, La Jolla, CA 92037 USA
Schork, Nicholas J.
;
Topol, Eric J.
论文数: 0引用数: 0
h-index: 0
机构:
Scripps Translat Sci Inst, La Jolla, CA 92037 USA
Scripps Hlth, La Jolla, CA USA
Scripps Res Inst, Dept Mol & Expt Med, La Jolla, CA 92037 USA
Scripps Clin, La Jolla, CA 92037 USAScripps Translat Sci Inst, La Jolla, CA 92037 USA
机构:
Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, 3000 Leuven
Department of Medical Humanities, VU University Medical Center, Department of Clinical Genetics, 1007 MB AmsterdamCentre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, 3000 Leuven
Borry P.
;
Cornel M.C.
论文数: 0引用数: 0
h-index: 0
机构:
Department of Medical Humanities, VU University Medical Center, Department of Clinical Genetics, 1007 MB AmsterdamCentre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, 3000 Leuven
Cornel M.C.
;
Howard H.C.
论文数: 0引用数: 0
h-index: 0
机构:
Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, 3000 LeuvenCentre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, 3000 Leuven
机构:
Section Community Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam
Centre for Medical Systems Biology, Leiden
Centre for Society and the Life Sciences, Nijmegen
Department of Clinical Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, 1007 MB AmsterdamSection Community Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam
Cornel M.C.
;
Van El C.G.
论文数: 0引用数: 0
h-index: 0
机构:
Section Community Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam
Centre for Medical Systems Biology, Leiden
Centre for Society and the Life Sciences, NijmegenSection Community Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam
Van El C.G.
;
Borry P.
论文数: 0引用数: 0
h-index: 0
机构:
Section Community Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam
Centre for Biomedical Ethics and Law, K.U. Leuven, LeuvenSection Community Genetics, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam
机构:
Seattle Childrens Res Inst, Treuman Katz Ctr Pediat Bioeth, Seattle, WA 98101 USASeattle Childrens Res Inst, Treuman Katz Ctr Pediat Bioeth, Seattle, WA 98101 USA
Crouch, Julia
;
Yu, Joon-Ho
论文数: 0引用数: 0
h-index: 0
机构:
Univ Washington, Dept Pediat, Seattle, WA 98195 USASeattle Childrens Res Inst, Treuman Katz Ctr Pediat Bioeth, Seattle, WA 98101 USA
Yu, Joon-Ho
;
Shankar, Aditi G.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Washington, Dept Pediat, Seattle, WA 98195 USASeattle Childrens Res Inst, Treuman Katz Ctr Pediat Bioeth, Seattle, WA 98101 USA
Shankar, Aditi G.
;
Tabor, Holly K.
论文数: 0引用数: 0
h-index: 0
机构:
Seattle Childrens Res Inst, Treuman Katz Ctr Pediat Bioeth, Seattle, WA 98101 USA
Univ Washington, Dept Pediat, Seattle, WA 98195 USASeattle Childrens Res Inst, Treuman Katz Ctr Pediat Bioeth, Seattle, WA 98101 USA