The impact of four family support programmes for people with a disability in Ireland

被引:7
作者
Daly, Louise [1 ]
Sharek, Danika [1 ]
DeVries, Jan [1 ]
Griffiths, Colin [1 ]
Sheerin, Fintan [1 ]
McBennett, Padraig [1 ]
Higgins, Agnes [1 ]
机构
[1] Trinity Coll Dublin, Dublin, Ireland
关键词
intellectual disability; family support; family-focused support; family-centred support; capacity building;
D O I
10.1177/1744629514564584
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
Background: This article reports on an evaluation of four family support programmes in Ireland for families of people with a physical or an intellectual disability or autism. The focus of the evaluation, which took place within a year of the programmes' completion, was on establishing whether the programmes had an impact on families' capacity to effectively support their family member. Method: A mixed-method design was used, which included a survey (n = 38) and interviews (n = 19) with participating family members. Ethical approval for the study was given by the relevant university ethics committee. Results: Findings suggest that participation in the programmes enhanced knowledge, attitudes, and competencies of families and also impacted their ability to advocate for their family member and to connect with the community. Discussion and conclusions: Whilst outcomes were overwhelmingly positive, further follow-up would be required to ascertain if sustained capacity building took place.
引用
收藏
页码:34 / 50
页数:17
相关论文
共 32 条
[1]   Recommended outcomes for families of young children with disabilities [J].
Bailey, Donald B., Jr. ;
Bruder, Mary Beth ;
Hebbeler, Kathy ;
Carta, Judith ;
Defosset, Michelle ;
Greenwood, Charles ;
Kahn, Lynne ;
Mallik, Sangeeta ;
Markowitz, Joy ;
Spiker, Donna ;
Walker, Dale ;
Barton, Lauren .
JOURNAL OF EARLY INTERVENTION, 2006, 28 (04) :227-251
[2]  
Breckenridge J, 2010, INTENSIVE FAMILY SUP
[3]  
Brown I., 2006, FAMILY QUALITY LIFE
[4]  
Brown I., 2004, FAMILIES PEOPLE MENT, P3
[5]   Family-to-Family Link Up Program: A community-based initiative supporting families caring for someone with an acquired brain injury [J].
Butera-Prinzi, Franca ;
Charles, Nella ;
Heine, Kate ;
Rutherford, Brenda ;
Lattin, Diane .
NEUROREHABILITATION, 2010, 27 (01) :31-47
[6]  
Chenoweth L.I., 2004, INT J INCLUSIVE EDUC, V8, P59, DOI 10.1080/1360311032000139467
[7]   Mapping support policies for informal carers across the European Union [J].
Courtin, Emilie ;
Jemiai, Nadia ;
Mossialos, Elias .
HEALTH POLICY, 2014, 118 (01) :84-94
[8]  
Creswell J. W., 2012, QUAL INQ
[9]  
Dempsey Ian, 1995, Australia and New Zealand Journal of Developmental Disabilities, V20, P67
[10]  
Department of Health , 2012, NAT CAR STRAT REC SU